Personal profile
Overview
I am Professor of Social Work Education and Research within the Division of Nursing, Midwifery and Social Work.
I am also the founder and co-director of SORD - the Social Reseach with Deaf People programme
I am a Fellow of the Academy of Social Sciences (FAcSS) http://blogs.mhs.manchester.ac.uk/news-hub/2015/10/30/social-sciences-academics-work-recognised-by-academy-of-social-sciences/
I also currently hold the role of Distinguished Visiting Professor in the Centre for Deaf Studies, University of the Witwatersrand, South Africa.
I am a Senior Fellow of the NIHR School for Social Care Research.
Biography
Following her BA Hons. in English Literature from King’s College, Cambridge (1986), Alys worked as a residential social work assistant. She qualified as a social worker in 1989 with a MSc in Applied Social Studies and a CQSW from Oxford University. She went on to work for Cambridgeshire Social Services as a community mental health social worker, ASW, generic social worker and specialist social worker with Deaf people. She gained her PhD in 1995 from the Centre for Deaf Studies, University of Bristol, on the impact on hearing familes of sign bilingual approaches to early intervention, carrying out her fieldwork in both BSL (British Sign Langauge) and English.
Author of over 150 academic publications, her main research interests are: (i) early intervention with deaf children and their families; (ii) improvements in the provision and effectiveness of health and social care services for deaf chidlren and adults across the life span; (iii) social science research methodologies in the context of signed languages and d/Deaf people.
She currently lco-eads the Social Reserach with Deaf People group (SORD) which comprises a multidisciplinary, bilingual group of Deaf and hearing researchers working on a range of applied social research projects connected with family, service and community contexts which involve Deaf people. https://sites.manchester.ac.uk/sord/
Formerly international visiting scholar at the National Technical Insititute for Deaf People, RIT, USA and visiting professor University of British Columbia, Canada, she is currently Distinguished Visiting Professor at the Centre for Deaf Studies, University of the Witwatersrand, South Africa.
Alys is a Senior Fellow of the NIHR School for Social Care Research. In 2015 was conferred FAcSS (Fellow of the Academy of Social Sciences) for her contributions to social work and social research with Deaf people(s) http://blogs.mhs.manchester.ac.uk/news-hub/2015/10/30/social-sciences-academics-work-recognised-by-academy-of-social-sciences/
In 2016 she won the Times Higher Education Award for Outstanding Research Supervisor of the Year http://www.manchester.ac.uk/discover/news/alys-wins-the-inaugural-times-higher-education-award-for-outstanding-research-student-supervision/
In 2022 she was named in the Shaw Trust Disdabilty Power 100 list of the most influential disabled peopel in the UK as a Judge's Choice: https://emarketing.manchester.ac.uk/uommhscommslz/lz.aspx?p1=MlWDUyMTY0MVMwNDc1OjBEQzNFRUQ2QzEyRTU1NEU0MDdBRURFNUUwM0UxRkRF-&CC=&w=120403
Research interests
My research primarily concerns deaf children and families; health and social care services and organisational research concering d/Deaf people over the life course; social science research methodologies in the context of signed languages and the intersection of being Deaf and disability. My research programme (SORD: Social Research with Deaf People) is a research group within the Division of Nursing, Midwifery and Social Work. I enjoy an international reputation for the quality and relevance of my work to both service improvement and theoretical innovation in applied social research in this specialist field.
Deaf Children and Families
Work focuses on understanding better the diversity of hearing family contexts in which services seek to intervene and deaf children seek to develop. This is a rapidly changing situation in light of very early identification of deafness, growth in cochlear implantation and greater recognition of Sign Language.
Current projects include:
- the READY study - a prospective longitudinal natioanl study of deaf youth. See: https://sites.manchester.ac.uk/thereadystudy/
Recently completed projects include:
- a qualitative study of families with a deaf child with autism, funded by MRC as part of a larger study led by the National Deaf Child and Adolescent Mental Health Service into better screening and assessment instruments for deaf children with autism.
- a longitudinal study of 600 deaf babies under 5 in South Africa focussing on profiling children, families and available services against outcomes and development. (Main collaborator - Professor Claudine Storbeck and the Hi Hopes service based in Johannesburg)
- a study of best practice in Further Education for deaf young people (funded by NDCS)
Health and Social Care Research Concerning d/Deaf people
Work focusses on both the impact of Deafness and d/Deaf people on the provision of services and the impact of services on d/Deaf people.
Recent projects include:
- the development of a life-story tool for Deaf people with dementia (funded by NIHR/ESRC)
- the dissemination of key findings to service providers and the Deaf community of a recent project exploring the barriers to early identification of dementia amongst Deaf people (both projects funded by the Alzheimer's Society)
- a study of the effectiveness and cost effectiveness of IAPT delivered directly in BSL by Deaf people in comparison with Deaf people accessing usual care (mainstream IAPT) with reasonable adjustments (funded by NIHR)
- a study exploring quality standards in interpreting and translation provision for Deaf people accessing primary care (funded by NHS England)
Methodologies and method in the context of signed languages
Social research involving d/Deaf people inevitably involves encountering a huge diversity of language use and preference that is closely linked to identity and culture. Data are routinely collected in multiple languages (English, BSL), multiple modalities (visual, orthographic, spoken) and by both Deaf and hearing researchers who themselves have a diversity of language use. Theoretical work in this field has centred on the implications for validity and epistemology in qualitative work of this diversity; and issues of translation in the development research instruments. A co-authored text on social science research and d/Deaf people is published by Oxford in 2014.
"Translating the Deaf Self" is a recently completed project with colleagues at Heriot Watt University and funded by the AHRC under their Translating Cultures Theme.
Two projects funded by AHRC/MRC global challenges have explored through film and photography resilience amongst Deaf childrne in South Africa.
Teaching
I enjoy teaching a wide range of students and topics associated with social work, social care and social research methodologies/methods. This means I mainly teach on the MA Social Work Programme, supervising student dissertations, the MRes in Health and Social Care on the Foundations of Research course unit and dissertation supervision as well as having several PhD students. I supervise students in either English or BSL.
My collaborations
- Dr Audrey Bowen
- Professor John Bamford
- Professor Adrian Davis
- Professor Linda Davies
- Dr Katherine Rogers
- Professor John Keady
- Professor Karina Lovell
- Dr Emma Ferguson-Coleman
- Rosemary Oram
- Dr Hilary Sutherland
- Claire Dodds
- Catherine Nassimi-Green
- Dr Goedele DeClerck
- Gemma Shields
- Dr Celia Hulme
- Dr Cristian Iturriaga
- Francisco Espinoza
- Dr Rebecca Tipton
Memberships of committees and professional bodies
- SWE registered social worker
- FAcSS
- Senior Fellow of the NIHR School for Social Care Research
Methodological knowledge
- Action Research
- Evaluation
- Qualitative
- Mixed Methods
- Social science reserach methodologies and method in the context of sign language users
Qualifications
- PhD in Deaf Studies, 1995, University of Bristol (Centre for Deaf Studies)
- MSc in Applied Social Studies, 1989, University of Oxford
- BA Hons. in English Literature, 1986, University of Cambridge (King's College)
- CQSW, 1989, University of Oxford
Social responsibility
Between 2019 and 2022 I was the University of Manchester Academic Lead for Disability Equality.
Our research group SORD regularly provides community outreach activities to the local and national Deaf community to promote better understanding of our research and to increase community particiation in its goals and objectives. Most of our research work is also summarised in BSL for a lay populaiton and made freely available via the SORD web site.
Education/Academic qualification
Doctor of Social Science, Family adjustment to a deaf child in a bilingual/bicultural framework, University of Bristol
1 Sept 1992 → 1 Oct 1995
Award Date: 1 Dec 1995
Master of Social Science, Applied Social Studies, Oxford University
30 Sept 1987 → 31 Aug 1989
Award Date: 15 Jul 1989
Bachelor of Arts, University of Cambridge
30 Sept 1986 → 31 Jul 1989
Award Date: 1 Jul 1986
External positions
Visiting Professor, University of British Columbia
2011
Distinguished Visiting Professor, University of Witwatersrand, Johannesburg
2005 → …
Visiting International Scholar, Rochester Institute of Technology
Sept 2000 → Dec 2000
Areas of expertise
- H Social Sciences (General)
- Deaf studies
- Sign language
Research Beacons, Institutes and Platforms
- Creative Manchester
- Global inequalities
- Healthier Futures
Keywords
- deaf
- sign language
- social work
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
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SDG 1 No Poverty
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SDG 3 Good Health and Well-being
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SDG 4 Quality Education
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SDG 8 Decent Work and Economic Growth
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SDG 10 Reduced Inequalities
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SDG 11 Sustainable Cities and Communities
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SDG 16 Peace, Justice and Strong Institutions
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SDG 17 Partnerships for the Goals
Fingerprint
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Collaborations and top research areas from the last five years
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Social model of disability: final report: Social research number: 57/2026
Rutherford, L., Collins, D., Shah, D., Das, A., Radicati, A., Begum, Y., Rogers, K., Swannack, R. & Young, A., 25 Mar 2026, Cardiff: Welsh Government. 184 p.Research output: Book/Report › Commissioned report › peer-review
Open AccessFile -
The Economic Costs of Congenital Hearing Loss in a South African Cohort.
Mdewa, W., Storbeck, C., Young, A., Goldstein, S., Moola, A. & Theshela, E., 19 Mar 2026, In: Health Services Insights . 19, p. 1 11 p.Research output: Contribution to journal › Article › peer-review
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Adaptation and pilot testing of the Early Learning Outcome Measure (ELOM) (4&5) Years Assessment tool in South African Sign Language
Young, A., Storbeck, C., Rogers, K., Swannack, R., Dawes, A. & Girdwood, E., 4 Sept 2025, In: PLOS Global Public Health. 5, 9, e0005117.Research output: Contribution to journal › Article › peer-review
Open AccessFile18 Downloads (Pure) -
A scoping review of sign language interpreter-mediated encounters within health and social work contexts in South Africa
Storbeck, C., Young, A., Davies, R., Kotze, T., Tipton, R., Hulme, C. & Vicary, S., 2025, In: INPLASY International Platform of Registered Systematic Review and Meta-analysis Protocols.Research output: Contribution to journal › Article
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Assessing deaf parents in safeguarding and child protection processes: Deaf experts’ experience of routine social work practice
Oram, R., Cartney, P. & Young, A., 5 Jul 2025, In: Qualitative Social Work. 24, 4, p. 504-523 15 p.Research output: Contribution to journal › Article › peer-review
Open Access
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Methodological innovations (SORD)
Young, A. (PI), Ferguson-Coleman, E. (Researcher), Rogers, K. (Researcher), Dodds, C. (PGR student), Iturriaga Seguel, C. (PGR student), Oram, R. (PGR student), Russell, J. (PGR student) & Hulme, C. (PGR student)
Project: Research
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d/Deaf children and families (SORD)
Young, A. (PI), Ferguson-Coleman, E. (Researcher), Rogers, K. (Researcher), Dodds, C. (PGR student), Iturriaga Seguel, C. (PGR student), Oram, R. (PGR student), Russell, J. (PGR student) & Hulme, C. (PGR student)
Project: Research
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Services improvement (SORD)
Young, A. (PI), Ferguson-Coleman, E. (Researcher), Rogers, K. (Researcher), Dodds, C. (PGR student), Iturriaga Seguel, C. (PGR student), Oram, R. (PGR student), Russell, J. (PGR student) & Hulme, C. (PGR student)
Project: Research
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Health and wellbeing (SORD)
Young, A. (PI), Ferguson-Coleman, E. (Researcher), Rogers, K. (Researcher), Dodds, C. (PGR student), Iturriaga Seguel, C. (PGR student), Oram, R. (PGR student), Russell, J. (PGR student) & Hulme, C. (PGR student)
Project: Research
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The impact of an improvised music-making programme on care home staff and family carer well-being: a process evaluation
Keady, J. (PI), Bithell, C. (CoI), Gagatsis, A. (CoI) & Young, A. (CoI)
1/06/22 → 30/11/23
Project: Research
Prizes
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FCEI lifetime achievement award
Young, A. (Recipient), 16 May 2014
Prize: National/international honour
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Named in the Disability Power 100 list 2022
Young, A. (Recipient), 16 Oct 2022
Prize: Other distinction
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Spotlight on Dementia: Research in Motion
Ferguson-Coleman, E. (Recipient), Young, A. (Recipient) & Keady, J. (Recipient), 10 Aug 2022
Prize: Prize (including medals and awards)
Activities
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What works? The benefits of early access to sign languages.
Rogers, K. (Plenary speaker), Rowley, K. (Plenary speaker), Young, A. (Speaker) & Swannack, R. (Speaker)
17 Jul 2025 → 18 Jul 2025Activity: Talk or presentation › Invited talk › Research
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BSL users and social care
Oram, R. (Speaker) & Young, A. (Speaker)
3 Apr 2024Activity: Talk or presentation › Invited talk › Research
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Joint AMHP and Interpreter Training Events (May/September 2023)
Tipton, R. (Co-Organiser), Young, A. (Co-Organiser) & Hulme, C. (Co-Organiser)
3 May 2023 → 4 Sept 2023Activity: Participating in or organising event(s) › Organising a conference, workshop, exhibition, performance, inquiry, course etc › Research
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Guidance for Safeguarding Partners (England): Deaf Children, Young People and their Families
Young, A. (Other)
1 Aug 2022Activity: Internal positions, career professional development, other peer review and other › Other › Research
File -
BDA Scotland Let's Talk About Deaf Dementia Research Report for Care Homes in Scotland
Ferguson-Coleman, E. (Plenary speaker) & Young, A. (Plenary speaker)
16 Jun 2022Activity: Talk or presentation › Invited talk › Research
Impacts
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From hearing screening to early intervention for deaf children and their families
Bamford, J. (Participant), Davis, A. (Participant), Young, A. (Participant), Uus, K. (Participant), Mccracken, W. (Participant), Carr, G. (Participant), Tattersall, H. (Participant), Hunt, R. (Participant) & Gascon-Ramos, M. (Participant)
Impact: Health impacts
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Guidance for commissioners: interpreting and translation standards in primary care
Young, A. (Corresponding participant), Dodds, C. (Participant) & Ferguson-Coleman, E. (Participant)
Impact: Health and wellbeing
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Guidance for commissioners of primary mental health services for deaf people
Young, A. (Corresponding participant)
Impact: Health and wellbeing
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INForMHAA: Interpreter Mediated Mental Health Act Assessments. Best practices for Approved Mental Health Professionals and Interpreters Working Together
Young, A. (Corresponding participant), Tipton, R. (Participant), Hulme, C. (Participant), Vicary, S. (Collaborator), Napier, J. (Collaborator) & Rodriguez Vicente, N. (Collaborator)
Impact: Health and wellbeing
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Datasets
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The READY Study - Datasets and documentation
Young, A. (Creator), Espinoza, F. (Creator), Dodds, C. (Creator), Squires, G. (Creator), Rogers, K. (Creator), Chilton, H. (Creator) & O'Neill, R. (Creator), University of Manchester Figshare, 26 Jun 2025
DOI: 10.48420/19566031, https://figshare.manchester.ac.uk/articles/dataset/The_READY_Study_-_Baseline_data/19566031
Dataset
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Early Learning Outcome Measure (ELOM) (4&5) in South African Sign Language - Dataset
Young, A. (Creator), Storbeck, C. (Creator), Rogers, K. (Creator), Swannack, R. (Creator), Dawes, A. (Creator) & Girdwood, E. (Creator), University of Manchester Figshare, 27 Mar 2025
DOI: 10.48420/28622990, https://figshare.manchester.ac.uk/articles/dataset/Early_Learning_Outcome_Measure_ELOM_4_5_in_South_African_Sign_Language_-_Dataset/28622990/1
Dataset
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INForMHAA - Interpreter Mediated Mental Health Act Assessments - Interview Datasets
Young, A. (Creator), Vicary, S. (Creator), Napier, J. (Creator), Tipton, R. (Creator), Rodriguez-Vicente, N. (Creator) & Hulme, C. (Creator), University of Manchester Figshare, 26 Mar 2025
DOI: 10.48420/c.7738909, https://figshare.manchester.ac.uk/collections/INForMHAA_-_Interpreter_Mediated_Mental_Health_Act_Assessments_-_Interview_Datasets/7738909 and one more link, https://figshare.manchester.ac.uk/collections/INForMHAA_-_Interpreter_Mediated_Mental_Health_Act_Assessments_-_Interview_Datasets/7738909/1 (show fewer)
Dataset
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INForMHAA - Interpreter-mediated Mental Health Act Assessments - Interpreter Interview Transcripts
Young, A. (Creator), Vicary, S. (Creator), Napier, J. (Creator), Tipton, R. (Creator), Rodriguez-Vicente, N. (Creator) & Hulme, C. (Creator), University of Manchester Figshare, 26 Mar 2025
DOI: 10.48420/28654661, https://figshare.manchester.ac.uk/articles/dataset/INForMHAA_-_Interpreter-mediated_Mental_Health_Act_Assessments_-_Interpreter_Interview_Transcripts/28654661 and one more link, https://figshare.manchester.ac.uk/articles/dataset/INForMHAA_-_Interpreter-mediated_Mental_Health_Act_Assessments_-_Interpreter_Interview_Transcripts/28654661/1 (show fewer)
Dataset
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INForMHAA - Interpreter-mediated Mental Health Act Assessments - AMHP Educator Interview Transcripts
Young, A. (Creator), Vicary, S. (Creator), Napier, J. (Creator), Tipton, R. (Creator), Rodriguez-Vicente, N. (Creator) & Hulme, C. (Creator), University of Manchester Figshare, 26 Mar 2025
DOI: 10.48420/28654646, https://figshare.manchester.ac.uk/articles/dataset/INForMHAA_-_Interpreter-mediated_Mental_Health_Act_Assessments_-_AMHP_Educator_Interview_Transcripts/28654646/1 and one more link, https://figshare.manchester.ac.uk/articles/dataset/INForMHAA_-_Interpreter-mediated_Mental_Health_Act_Assessments_-_AMHP_Educator_Interview_Transcripts/28654646 (show fewer)
Dataset
Press/Media
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Spotlight on Dementia
Ferguson-Coleman, E., Young, A. & Keady, J.
10/08/22
1 item of Media coverage
Press/Media: Research
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Researcher wins award for film raising awareness of Deaf people affected by dementia
Ferguson-Coleman, E., Young, A. & Keady, J.
9/08/22
1 item of Media coverage
Press/Media: Blogs and social media
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