Research output per year
Research output per year
- 1 - 50 out of 109 results
Search results
-
2023
Addressing education and employment outcomes in the provision of healthcare for young people with physical long-term conditions: A systematic review and mixed methods synthesis
Farre, A., Lunt, L., Lee, R., Verstappen, S. & Mcdonagh, J., 1 Jul 2023, In: Patient education and counseling. 112, 107765.Research output: Contribution to journal › Article › peer-review
Open Access -
Beliefs About Pain in Pediatric Inflammatory and Noninflammatory Chronic Musculoskeletal Conditions: A Scoping Review
Mountain, D. C., Ali, S. M., Ghio, D., McDonagh, J. E., Cordingley, L. & Lee, R. R., 20 Oct 2023, In: Journal of Pediatric Psychology. 48, 10, p. 825-841 17 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Continuing specialist care into adulthood in young people with juvenile idiopathic arthritis: a retrospective cohort study using electronic health records in England
Costello, R. E., Kearsley-Fleet, L., McDonagh, J. E., Hyrich, K. & Humphreys, J. H., 1 May 2023, In: Rheumatology (Oxford, England). 62, 5, p. 1936-1943 8 p.Research output: Contribution to journal › Article › peer-review
Open Access -
“My gut feeling is…”: An ethnographic study exploring interprofessional communication about children and adolescents with chronic musculoskeletal pain in paediatric rheumatology
Lee, R., Mcdonagh, J., Rapley, T., Farre, A., Connelly, M., Palermo, T. M., Toupin April, K., Wakefield, E., Peters, S. & Cordingly, L., 16 Jul 2023, In: Journal of Pain.Research output: Contribution to journal › Article › peer-review
Open Access -
2022
Continuing specialist care into adulthood in young people with juvenile idiopathic arthritis: a study using electronic health records in England.
Mcdonagh, J., 2022, In: Rheumatology (Print). 61Research output: Contribution to journal › Article › peer-review
-
Incidence and prevalence of Juvenile Idiopathic Arthritis in the United Kingdom 2000-2018: results from the Clinical Practice Research Datalink
Costello, R., McDonagh, J., Hyrich, K. L. & Humphreys, J. H., 1 Jun 2022, In: Rheumatology. 61, 6, p. 2548-2554 7 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Is time a healer? How quality of life changes over time reported by parents of children and young people with Juvenile Idiopathic Arthritis.
Smith, A., Saqib, B., Lee, R., Shoop-Worrall, S., Hyrich, K., Mcdonagh, J. & Cordingley, L., 13 May 2022, (Accepted/In press) In: Rheumatology (Oxford).Research output: Contribution to journal › Article › peer-review
-
Quality improvement in juvenile idiopathic arthritis: a mixed-methods implementation pilot of the CAPTURE-JIA dataset
McErlane, F., Anderson, C., Lawson-Tovey, S., Lee, B., Lee, C., Lunt, L., McDonagh, J. E., Smith, A. D., Smith, N. & Cleary, G., 18 Jun 2022, In: Pediatric Rheumatology. 20, 1, 43.Research output: Contribution to journal › Article › peer-review
Open Access -
THE ROLE OF AGE IN DELAYS TO RHEUMATOLOGICAL CARE IN JUVENILE IDIOPATHIC ARTHRITIS
Shoop-Worrall, S., Moull, L., Mcdonagh, J. & Hyrich, K., 23 Feb 2022, (Accepted/In press) In: Journal of Rheumatology.Research output: Contribution to journal › Article › peer-review
-
The Your Rheum story: involvement of young people in rheumatology research
Esen, E., Gnanenthiran, S., Lunt, L. & Mcdonagh, J., Dec 2022, In: BMC Rheumatology. 6, 1, p. 43 8 p., 43.Research output: Contribution to journal › Article › peer-review
Open Access -
“That’s what makes me better”: Investigating children and adolescents’ experiences of pain communication with healthcare professionals in paediatric rheumatology
Lee, R. R., Mountain, D., Connelly, M., Palermo, T. M., Peters, S., Cordingley, L. & Mcdonagh, J. E., 6 Oct 2022, (E-pub ahead of print) In: European Journal of Pain.Research output: Contribution to journal › Article › peer-review
-
2021
A Common Functional Disability Score for Young People with Juvenile Idiopathic Arthritis
Shoop-Worrall, S., Oude Voshaar, M., Mcdonagh, J., Van de Laar, M., Wulffraat, N., Thomson, W., Hyrich, K. & Verstappen, S., 1 Jul 2021, In: Arthritis Care & Research. 73, 7, p. 947-954Research output: Contribution to journal › Article › peer-review
Open AccessFile149 Downloads (Pure) -
Data protection, information governance and the potential erosion of ethnographic methods in healthcare?
Lee, R. R., Mcdonagh, J. E., Farre, A., Peters, S., Cordingley, L. & Rapley, T., 2 Nov 2021, (Accepted/In press) In: Sociology of Health and Illness.Research output: Contribution to journal › Article › peer-review
-
Identifying the content and context of pain within paediatric rheumatology healthcare professional curricula in the UK: a summative content analysis
Lee, R., Mcdonagh, J. E., Connelly, M., Peters, S. & Cordingley, L., 1 Dec 2021, In: Pediatric Rheumatology. 19, 1, 129.Research output: Contribution to journal › Article › peer-review
Open Access -
2020
Characterising pain flares in adolescent inflammatory and non‐inflammatory musculoskeletal disorders: A qualitative study using an interpretative phenomenological approach
Khanom, S., Mcdonagh, J. E., Briggs, M. & Mcbeth, J., 2020, In: European Journal of Pain. 24, 9, p. 1785-1796Research output: Contribution to journal › Article › peer-review
Open Access -
Facilitating transition of young people with long term health conditions from children’s to adult’s health services – implications of a 5-year research programme
Colver, A., Rapley, T., Parr, J. R., McConachie, H., Dovey-Pearce, G., Le Couteur, A., Mcdonagh, J., Bennett, C., Maniatopoulos, G., Pearce, M. S., Reape, D., Chater, N., Gleeson, H. & Vale, L., 2020, In: Clinical medicine (London, England). 20, 1, p. 74-80Research output: Contribution to journal › Article › peer-review
-
Presentation, treatment response and short-term outcomes in Paediatric Inflammatory Multisystem Syndrome temporally associated with SARS-CoV-2 (PIMS-TS)
Felsenstein, S., Willis, E., Hanna, L., Liza, M., Cleary, G., Mahmood, K., Porter, D., Jones, J. & Mcdonagh, J., 2020, In: Journal of Clinical Medicine. 9, 10Research output: Contribution to journal › Article › peer-review
-
Returning to School: Children and Young People Living with Chronic Illness
Gray, N. J., Jourdan, D. & Mcdonagh, J., 5 Aug 2020, (Accepted/In press) In: Journal of Children's Services.Research output: Contribution to journal › Article › peer-review
-
Shifting the Mindset – Adolescent and Young Adult Rheumatology in Transition
Willis, E. & Mcdonagh, J., 21 Feb 2020, In: The Lancet Rheumatology. 2, 4, p. E236-E244Research output: Contribution to journal › Article › peer-review
Open AccessFile67 Downloads (Pure) -
Validation of novel patient-centred juvenile idiopathic arthritis-specific patient-reported outcome and experience measures (PROMs/PREMs)
Lunt, L., Shoop-Worrall, S., Smith, N., Cleary, G., Mcdonagh, J., Smith, A., Thomson, W. & McErlane, F., 19 Nov 2020, In: Pediatric Rheumatology. 18, 1, 19.Research output: Contribution to journal › Article › peer-review
Open Access -
Young Minds: Mental Health and Transitional Care in Adolescent and Young Adult Rheumatology
Palman, J. & Mcdonagh, J. E., 7 Dec 2020, (E-pub ahead of print) In: Open Access Rheumatology: Research and Reviews. Volume 12, p. 309-321Research output: Contribution to journal › Article › peer-review
Open Access -
2019
Can we normalise developmentally appropriate health care for young people in UK hospital settings? An ethnographic study
Rapley, T., Farre, A., Parr, J. R., Wood, V. J., Reape, D., Dovey-Pearce, G., McDonagh, J. & Transition Collaborative Group, 9 Sept 2019, In: BMJ Open. 9, 9, p. e029107Research output: Contribution to journal › Article › peer-review
Open Access -
Comparing Proxy, Adolescent and Adult Assessments of Functional Ability in Adolescents with Juvenile Idiopathic Arthritis
Shoop-Worrall, S., Hyrich, K., Verstappen, S., Sergeant, J., Baildam, E., Chieng, A., Davidson, J., Foster, H. E., Ioannou, Y., Mcerlane, F., Wedderburn, L. R., Thomson, W. & Mcdonagh, J., 2019, In: Arthritis Care & Research.Research output: Contribution to journal › Article › peer-review
-
Healthcare transition in pediatric liver transplantation: The perspectives of pediatric and adult healthcare professionals
Wright, J., Elwell, L., McDonagh, J., Kelly, D., McClean, P., Ferguson, J. & Wray, J., Sept 2019, In: Pediatric transplantation. 23, 6, e13530.Research output: Contribution to journal › Article › peer-review
Open AccessFile12 Downloads (Pure) -
The impact of arthritis on the educational and early work experiences of young people: a qualitative secondary analysis
Farre, A., Ryan, S., McNiven, A. & Mcdonagh, J., 2019, In: International Journal of Adolescent Medicine and Health .Research output: Contribution to journal › Article › peer-review
Open AccessFile15 Downloads (Pure) -
The prevention and treatment of glucocorticoid-induced osteopaenia in juvenile rheumatic disease: A randomised double-blind controlled trial
Rooney, M., Bishop, N., Davidson, J., Beresford, M. W., Pilkington, C., McDonagh, J., Wyatt, S., Gardner-Medwin, J., Satyapal, R., Clinch, J., Foster, H., Elliott, M. & Verghis, R., Jul 2019, In: EClinicalMedicine. 12, p. 79-87 9 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile45 Downloads (Pure) -
2018
A longitudinal, observational study examining the relationships of patient satisfaction with services and mental well-being to their clinical course in young people with Type 1 diabetes mellitus during transition from child to adult health services
The Transition Collaborative Group, 7 Aug 2018, In: Diabetic Medicine. 35, 9, p. 1216-1222 7 p.Research output: Contribution to journal › Article › peer-review
Open Access -
A longitudinal, observational study of the features of transitional healthcare associated with better outcomes for young people with long-term conditions
Colver, A., Mcconachie, H., Le Couteur, A., Dovey-pearce, G., Mann, K. D., Mcdonagh, J. E., Pearce, M. S., Vale, L., Merrick, H. & Parr, J. R., 23 Jul 2018, In: BMC Medicine. 16, 1, 111.Research output: Contribution to journal › Article › peer-review
Open Access -
Are the health needs of young people with cerebral palsy met during transition from child to adult health care?
Mcdonagh, J. (Collaborator), 2018, In: Child: Care, Health and Development. 44, 3, p. 355-363Research output: Contribution to journal › Article › peer-review
Open AccessFile111 Downloads (Pure) -
Experiences of employment among young people with juvenile idiopathic arthritis: a qualitative study
Hanson, H., Hart, R. I., Thompson, B., Mcdonagh, J., Tattersall, R., Jordan , A. & Foster, H. E., 31 Jul 2018, In: Disability and Rehabilitation . 40, 16, p. 1921-1928 8 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile26 Downloads (Pure) -
How well do services for young people with long term conditions deliver features proposed to improve transition?
Colver, A., Pearse, R., Watson, R. M., Fay, M., Rapley, T., Mann, K. D., Le Couteur, A., Parr, J. R., McConachie, H., Bennett, C., Dovey-Pearce, G., Maniatopoulos, G., McDonagh, J., Reape, D., Vale, L., Chater, N., Gleeson, H., Bem, A., Bennett, S. & Billson, A. & 11 others, , 2018, In: BMC Health Services Research. 18, 1, 337.Research output: Contribution to journal › Article › peer-review
Open Access -
Long term outcomes following achievement of clinically inactive disease in juvenile idiopathic arthritis: the importance of definition.
Shoop-Worrall, S., Verstappen, S., Mcdonagh, J., Baildam, E., Chieng, A., Davidson, J., Foster, H., Ioannou, Y., McErlane, F., Wedderburn, L. R., Thomson, W. & Hyrich, K., Sept 2018, In: Arthritis and Rheumatology. 70, 9Research output: Contribution to journal › Article › peer-review
Open Access -
Making Healthcare Work for Young People
Mcdonagh, J. & The Transition Collaborative Group, Jun 2018, In: Archives of Disease in Childhood. 103, 6, p. 623-623 1 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Transition from children's to adults' services for young people using health or social care services (NICE Guideline NG43)
Willis, E. & Mcdonagh, J., 2018, In: Archives of Disease in Childhood. 103, 5, p. 253-256Research output: Contribution to journal › Article › peer-review
Open AccessFile120 Downloads (Pure) -
Untimely Illness: when diagnosis does not match age related expectations
Kirkpatrick, S., Locock, L., Farre, A., Ryan, S., Salisbury, H. & Mcdonagh, J., 2018, In: Health expectations : an international journal of public participation in health care and health policy. 21, 4, p. 730-740Research output: Contribution to journal › Article › peer-review
Open Access -
What do young people with rheumatic conditions in the UK think about research involvement? A qualitative study
Parsons, S., Thomson, W., Cresswell, K., Starling, B., McDonagh, J. E. & Barbara Ansell National Network for Adolescent Rheumatology (BANNAR), 2018, In: Pediatric Rheumatology. 16, 1, p. 35Research output: Contribution to journal › Article › peer-review
Open Access -
2017
Early Outcomes in Children with Antineutrophil Cytoplasmic Antibody (ANCA) Associated Vasculitis (AAV).
Mcdonagh, J. (Collaborator) & et al, 28 Jun 2017, In: Arthritis & Rheumatology (Hoboken). 69, 7, p. 1470-1479 9 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile74 Downloads (Pure) -
EULAR / PReS standards and recommendations for the transitional care of young people with juvenile-onset rheumatic diseases
Foster, H., Minden, K., Clemente, D., Leon, L., McDonagh, J. E., Kamphuis, S., Berggren, K., van Pelt, P., Wouters, C., Waite-Jones, J., Tattersall, R., Wyllie, R., Stones, S. R., Martini, A., Constantin, T., Schalm, S., Fidanci, B., Erer, B., Demirkaya, E. & Ozen, S. & 1 others, , 2017, In: Annals of the rheumatic diseases.Research output: Contribution to journal › Article › peer-review
Open AccessFile234 Downloads (Pure) -
Parents in transition: Experiences of parents of young people with a liver transplant transferring to adult services
Wright, J., Elwell, L., Mcdonagh, J., Kelly, D. A. & Wray, J., 1 Feb 2017, In: Pediatric transplantation. 21, 1Research output: Contribution to journal › Article › peer-review
Open AccessFile300 Downloads (Pure) -
Sleep in Adolescents and Young Adults
Bruce, E. S., Lunt, L. & Mcdonagh, J., 2017, In: Clinical Medicine. 17, 5, p. 424-428Research output: Contribution to journal › Article › peer-review
Open AccessFile75 Downloads (Pure) -
The Role of Pharmacists in Caring for Young People with Chronic Illness
Gray, N. J., Shaw, K. L., Smith, F. J., Burton, J., Prescott, J., Roberts, R., Terry, D. & Mcdonagh, J., 2017, In: Journal of Adolescent Health. 60, 2, p. 219-225Research output: Contribution to journal › Article › peer-review
Open AccessFile115 Downloads (Pure) -
What do young people with rheumatic disease believe to be important to research about their condition?
Parsons, S., Thomson, W., Cresswell, K., Starling, B. & Mcdonagh, J., 3 Jul 2017, In: Pediatric Rheumatology. 15, 53.Research output: Contribution to journal › Article › peer-review
Open Access -
2016
Being as Normal as Possible: How Young People Ages 16-25 Years Evaluate the Risks and Benefits of Treatment for Inflammatory Arthritis
Hart, R. I., McDonagh, J. E., Thompson, B., Foster, H. E., Kay, L. & Rapley, T., Sept 2016, In: Arthritis Care & Research. 68, 9, p. 1288-94 7 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Comparing Presenting Clinical Features in 48 Children With Microscopic Polyangiitis to 183 Children Who Have Granulomatosis With Polyangiitis (Wegener's): An ARChiVe Cohort Study
Cabral, D. A., Canter, D. L., Nanda, K., Wahezi, D. M., Spalding, S. J., Twilt, M., Benseler, S. M., Campillo, S., Charuvanij, S., Dancey, P., Eberhard, B. A., Elder, M. E., Hersh, A., Higgins, G. C., Huber, A. M., Khubchandani, R., Kim, S., Klein-Gitelman, M., Kostik, M. M. & Lawson, E. F. & 20 others, , Oct 2016, In: Arthritis & rheumatology (Hoboken, N.J.). 68, 10, p. 2514-26 13 p.Research output: Contribution to journal › Article › peer-review
-
Health professionals' and managers' definitions of developmentally appropriate healthcare for young people: conceptual dimensions and embedded controversies.
Farre, A., Wood, V., Mcdonagh, J. E., Parr, J. R., Reape, D., Rapley, T. & Transition Collaborative Group, 17 Jun 2016, In: Archives of Disease in Childhood. 101, 7, p. 628-33Research output: Contribution to journal › Article › peer-review
Open AccessFile142 Downloads (Pure) -
International and Interdisciplinary Identification of Health Care Transition Outcomes
Fair, C., Cuttance, J., Sharma, N., Maslow, G., Wiener, L., Betz, C., Porter, J., McLaughlin, S., Gilleland-Marchak, J., Renwick, A., Naranjo, D., Jan, S., Javalkar, K., Ferris, M., International and Interdisciplinary Health Care Transition Research Consortium & Mcdonagh, J. (Collaborator), Mar 2016, In: JAMA pediatrics. 170, 3, p. 205-11 7 p.Research output: Contribution to journal › Article › peer-review
-
Study protocol: Determining what young people with rheumatic disease consider important to research (the Young People’s Opinions Underpinning Rheumatology Research - YOURR project)
Parsons, S., Dack, K., Starling, B., Thomson, W. & Mcdonagh, J., 2016, In: Research Involvement and Engagement. 2, 22, 22.Research output: Contribution to journal › Article › peer-review
Open Access31 Downloads (Pure) -
Transition of care for adolescents from paediatric services to adult health services
Campbell, F., Biggs, K., Aldiss, S. K., O'Neill, P. M., Clowes, M., Mcdonagh, J., While, A. & Gibson, F., 29 Apr 2016, In: Cochrane Database of Systematic Reviews. 0, 4, CD009794.Research output: Contribution to journal › Article › peer-review
Open AccessFile1628 Downloads (Pure) -
‘Are these adult doctors gonna know me?’ Experiences of transition for young people with a liver transplant
Wright, J., Elwell, L., Mcdonagh, J., Kelly, D. A. & Wray, J., 2016, In: Pediatric transplantation. 20, 7, p. 912-920Research output: Contribution to journal › Article › peer-review
Open AccessFile249 Downloads (Pure) -
“Sometimes I feel like a pharmacist”: identity and medication use among adolescents with juvenile arthritis
McDonagh, J. E., Shaw, K. L., Prescott, J., Smith, F. J., Roberts, R. & Gray, N. J., 19 Oct 2016, In: Pediatric Rheumatology. 14, 57.Research output: Contribution to journal › Article › peer-review
Open Access