Personal profile

Research interests

I am interested in the impact of disability and long term illness on families and how support and services can be developed to meet their needs.  My main research interests relate to the experiences and support needs of children/young people with long-term/life-limiting conditions and their families. Issues examined include service organisation and transition to adult services and adulthood;  the lived experience of children, young people and parents; relationships between families and services and within the family; self-management and self-care.

In addition to work focusing on children, young people and families my research interests extend to adult long term conditions and the role played by health technologies and families in self-care support.

 

Current/Recent Research Projects

Understanding Vitamin-D deficiency and supplementation in Black and Asian Women to Guide the Co-Development of a Vitamin-D deficiency and supplementation Intervention. (NIHR RfPB)

 

Developing A Model For High Quality Service Design For Children And Young People With Common Mental Health Problems  (NIHR HS&DR)

 

Understanding Fatigue in Children and Young People with Sickle Cell Disease to Guide the Co-Development of a Fatigue Self-Management Intervention  (NIHR RfPB)

 

Investigating the wellbeing and support needs of adult siblings of children and young people with life-limiting conditions

 

Designing a Responsive and Integrative Model of Respite Care for Families of Children with Complex Care Needs and Conditions (CCNC) through Patient-Oriented Research  (CIHR)


Non-suicidal self-injury among youth: Perspectives of youth who self-harm, their families and service providers  (CIHR)

 

Making Visible the Life Stories of Families of Children who are Immunocompromised during COVID-19  (CIHR)

 

Advancing patient-centered care in young people living with chronic pain. Canadian Institutes of Health Research (CIHR)

 

Addressing the indirect and wider health impacts of COVID-19 on families of children living with disabilities. (CIHR)

 

Engaging youth in mental health research in the COVID-19 pandemic context via a youth co-design arts-based approach (NFRF)

 

Understanding the impacts of COVID-19 on the mental health and well-being of Canadian youth coming of age in COVID times. (CIHR)

 

Connections Matter: Fostering social connectedness in youth to optimize mental health and well-being. (CIHR)

 

Older adults’ experiences of living with cystic fibrosis:  a qualitative study

 

Google Scholar page:  http://tinyurl.com/zlylkax

Qualifications

  • Ph.D
  • M.Sc
  • B.Nurs
  • Registered Nurse
  • Registered Midwife
  • Registered Health Visitor
  • District Nursing Certificate

Expertise related to UN Sustainable Development Goals

In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):

  • SDG 3 - Good Health and Well-being

Research Beacons, Institutes and Platforms

  • Healthier Futures

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Collaborations and top research areas from the last five years

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