A literature review of preferences for end-of-life care in developed countries by individuals with different cultural affiliations and ethnicity

Roger Thomas*, Donna M. Wilson, Christopher Justice, Stephen Birch, Sam Sheps

*Corresponding author for this work

    Research output: Contribution to journalReview articlepeer-review

    Abstract

    Anticipatory decision making about end-of-life care is predominantly a North American concept. Researchers investigated four themes: advance directives, life support, communication, and decision making. Substantial differences exist among cultural groups in the percentages with living wills/ advance directives, and they are less frequent for those with family-centered decision making or with less trust in the healthcare system. African Americans prefer life support more than Asian Americans or European Americans. Cultural groups vary in their preferences about communicating terminal diagnoses. Non-English-speaking patients perceive communication as a barrier to care. Mexican Americans, Korean Americans, and Canadian First Nations emphasize family-based decision making at the end of life, and European Americans emphasize patient autonomy.

    Original languageEnglish
    Pages (from-to)142-161
    Number of pages20
    JournalJournal of Hospice and Palliative Nursing
    Volume10
    Issue number3
    DOIs
    Publication statusPublished - 1 May 2008

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