TY - JOUR
T1 - A roadmap to develop dementia research capacity and capability in Pakistan
T2 - A model for low- and middle-income countries
AU - Pakistan Dementia Research Stakeholder Group (PDRSG)
AU - Leroi, Iracema
AU - Chaudhry, Nasim
AU - Daniel, Anna
AU - Dunne, Ross
AU - Eman, Saima
AU - Farina, Nicolas
AU - Haidry, Sana-E-Zehra
AU - Husain, Nusrat
AU - Jafri, Hussain
AU - Karim, Salman
AU - Kiran, Tayyeba
AU - Khan, Murad
AU - Khan, Quratulain
AU - Malik, Shakil Jehangir
AU - Memon, Rakhshi
AU - Rana, Mowadat Hussain
AU - Sathish, Ambily
AU - Sheikh, Saima
AU - Tamizudin, Asad
AU - Tofique, Sehrish
AU - Zadeh, Zainab
N1 - © 2019 The Authors.
PY - 2019/10/2
Y1 - 2019/10/2
N2 - Objective: To produce a strategic roadmap for supporting the development of dementia research in Pakistan.Background: While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low- and middle-income countries (LMIC) like Pakistan.Methods: We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change-based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a "research question" priority survey, and consultations with Key Opinion Leaders.Results: We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real-world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life.Conclusion: This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures.
AB - Objective: To produce a strategic roadmap for supporting the development of dementia research in Pakistan.Background: While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low- and middle-income countries (LMIC) like Pakistan.Methods: We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change-based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a "research question" priority survey, and consultations with Key Opinion Leaders.Results: We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real-world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life.Conclusion: This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures.
U2 - 10.1016/j.trci.2019.11.005
DO - 10.1016/j.trci.2019.11.005
M3 - Review article
C2 - 31921968
SN - 1552-5260
VL - 5
SP - 939
EP - 952
JO - Alzheimer's & Dementia
JF - Alzheimer's & Dementia
ER -
