Challenges of Realising Patient-Centred Outcomes for Deaf Patients

In general populations, it has been recognised that patients play a key role in the quality of their own healthcare. However, the idea of realising patient-centered outcomes for the signing Deaf community, who experience the world in a visual way raises some challenging issues that are rarely acknowledged. Utilising published research and translational health projects involving Deaf people both in the UK and on international basis, this article discusses the challenges of realising patient-centered outcomes for Deaf people who are sign language users. The discussion includes an examination of: barriers to accessing healthcare for Deaf people; the impact of insufficient acquisition of knowledge about health-related issues; Deaf people’s limited fund of information; not recognising Deaf people’s values and citizenship rights; and challenges in gathering Deaf people’s reported outcomes. We contend that without including Deaf people in shaping the healthcare experience for them, whether at an interpersonal level of patient engagement or structurally, the concept of fulfilling patient-centered outcomes for Deaf people is achievable.