Data from the Evi-Dem study: characteristics, services, and costs of later- stage dementia care in England

Paul Clarkson, Sue Davies, Gemma Shields, Cecilia Toole, Ian Sheriff, Simon Kaye

Research output: Working paperPreprint

Abstract

Objectives:
This paper provides the data set from the Evi-Dem study, to promote data on the circumstances, services, costs, and outcomes of people in later stage dementia and their carers living at home in 17 areas of England. People with dementia’s sociodemographic data and data on their social networks, cognition, daily living activities, and quality of life were collected as were carers’ sociodemographic data and data on their quality of life, health and burden. The Evi-Dem project also provides data on the services received by people with dementia and their carers, and their costs. Inclusion criteria for participation were that they were aged 60 years and over, in later stages of dementia, had a carer, received an assessment/review of their care needs in the last three months, received support at home, and were resident within one of the sampled geographical areas.

Data description:
We provide sociodemographic data and data of cognitive, functional, and quality of life assessments of 518 people with dementia and their carers living at home across 17 areas of England. For each participant, standardized measures of these data are available as well as the volume, duration, and cost of support from services and carers and quality adjusted life years.
Original languageEnglish
PublisherResearch Square
Pages1-7
Number of pages7
Volume1
DOIs
Publication statusPublished - 14 Feb 2023

Publication series

NameResearch Square
PublisherResearch Square

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