Deterioration of basic activities of daily living and their impact on quality of life across different cognitive stages of dementia: A European study

Clarissa M. Giebel, Caroline Sutcliffe, Minna Stolt, Staffan Karlsson, Anna Renom-Guiteras, Maria Soto, Hilde Verbeek, Adelaida Zabalegui, David Challis

    Research output: Contribution to journalArticlepeer-review

    Abstract

    Background: Performing basic activities of daily living (ADLs) is one of the major difficulties encountered in dementia, which can have considerable negative impacts on the quality of life (QoL) of people with dementia (PwD). However, the extent to which basic ADL performance deteriorates across mild, moderate, and severe dementia is little examined and its impact, together with depression and neuropsychiatric behavior, upon QoL, is of considerable relevance across European countries. Methods: Data were drawn from people living in the community who were participants in a large-scale European study on transition from community living to care homes of PwD. PwD completed measures on cognitive functioning and QoL, and informal carers reported upon QoL, depressive symptomatology, psychopathology, and functional ability of the PwD. Results: ADL performance deteriorated differently for each activity. In particular, toileting, transfer, and feeding remained relatively intact throughout, whereas performance on bathing and dressing deteriorated to a greater extent from mild to severe dementia. It appears that continence was not affected by the stage of dementia with similar levels of impairment. Basic ADL performance impacted to different degrees on QoL across dementia stages and countries. Conclusions: Interventions aimed at maintaining independence or QoL need to target different ADLs across different dementia stages and perhaps also tailor interventions to the context of different countries. Findings contribute to the development of non-pharmaceutical interventions and governmental pledges to promote independence in dementia. © International Psychogeriatric Association 2014.
    Original languageEnglish
    Pages (from-to)1283-1293
    Number of pages10
    JournalInternational Psychogeriatrics
    Volume26
    Issue number8
    DOIs
    Publication statusPublished - 2014

    Keywords

    • activities of daily living
    • carers
    • dementia
    • depression
    • quality of life

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