Lay Abstract of Thesis:After a stroke, many survivors can experience difficulties thinking and understanding. They may have problems with memory, perception, problem-solving, planning, attention, and language. These problems are known as cognitive difficulties. Cognitive difficulties after stroke can affect confidence and mood as well as the ability to recover. Stroke survivors themselves can tell us about the impact of cognitive problems and whether a treatment has worked for them. Their opinions on treatment can be collected using questionnaires known as Patient Reported Outcome Measures. However, people with cognitive difficulties are rarely involved in designing and using these questionnaires.The first study in this thesis involved interviews with 16 stroke survivors. They talked about the important impacts of cognitive problems. These interviews were used to make recommendations about what a questionnaire should include and how it should look.The second study identified 20 existing questionnaires and compared them against the recommendations from the first study. None of the 20 questionnaires matched all of the recommendations, so a new questionnaire was needed.Stroke survivors then helped to develop and refine this new questionnaire that was named: the Patient Reported Evaluation of Cognitive State (PRECiS) scale. The final study tested PRECiS with a large number of stroke survivors with cognitive difficulties. Stroke survivors were positive about PRECiS and could complete it well, with support from a researcher. PRECiS seems to be a reliable questionnaire. That is, we get similar results when people complete PRECiS at two separate times. It also has other good qualities that we look for when testing questionnaires. More work is needed to improve PRECiS and this is discussed in the final chapter of the thesis. PRECiS may be a useful questionnaire to help us understand whether treatment works for people. We hope it will help improve the lives of people with cognitive difficulties after stroke.
|Publication status||Published - Oct 2015|