Development and implementation of ‘A guide to PPIE – Early Integration into Research Proposals’ in a multi-disciplinary consortium.

CLUSTER Consortium Champions; CLUSTER Consortium

doi:10.1093/rheumatology/kead482

Development and implementation of ‘A guide to PPIE – Early Integration into Research Proposals’ in a multi-disciplinary consortium.

CLUSTER Consortium Champions, CLUSTER Consortium

Research output: Contribution to journal › Article › peer-review

Abstract

The importance of Patient and Public Involvement and Engagement (PPIE) in the early phases of research design is significant and increasingly recognised throughout the research community. Here we describe the approach taken within the CLUSTER Consortium, setting out a stepwise process to support involvement at the earliest possible stage of project design, whilst acknowledging the real-world context of time pressures. This clearly defined strategic policy has ensured incorporation of PPIE into the early phases of research planning in CLUSTER and high-quality patient involvement has been demonstrated throughout the project.
Ultimately this approach will strengthen research outcomes, maximising benefit for patients with JIA and JIA-Uveitis.

Original language	English
Journal	Rheumatology
DOIs	https://doi.org/10.1093/rheumatology/kead482
Publication status	Published - 14 Sept 2023

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10.1093/rheumatology/kead482

Centre for Epidemiology Versus Arthritis.
Dixon, W. (PI), Bruce, I. (CoI), Felson, D. (CoI), Hyrich, K. (CoI), Lunt, M. (CoI), Mcbeth, J. (CoI), Mcdonagh, J. (CoI), O'Neill, T. (CoI), Sergeant, J. (CoI), Verstappen, S. (CoI) & Serafimova, I. (Support team)
1/08/18 → 31/07/25
Project: Research

Cite this

@article{beee3de689ae468bbf5dc5d8dabaad30,

title = "Development and implementation of {\textquoteleft}A guide to PPIE – Early Integration into Research Proposals{\textquoteright} in a multi-disciplinary consortium.",

abstract = "The importance of Patient and Public Involvement and Engagement (PPIE) in the early phases of research design is significant and increasingly recognised throughout the research community. Here we describe the approach taken within the CLUSTER Consortium, setting out a stepwise process to support involvement at the earliest possible stage of project design, whilst acknowledging the real-world context of time pressures. This clearly defined strategic policy has ensured incorporation of PPIE into the early phases of research planning in CLUSTER and high-quality patient involvement has been demonstrated throughout the project.Ultimately this approach will strengthen research outcomes, maximising benefit for patients with JIA and JIA-Uveitis.",

author = "{CLUSTER Consortium Champions} and {CLUSTER Consortium} and Richard Beesley and Feilding, {Freya Luling} and Rosser, {Elizabeth C.} and Shoop-Worrall, {Stephanie J. W.} and Alyssia McNeece and Zoe Wanstall and Kimme Hyrich and Wedderburn, {Lucy R.}",

year = "2023",

month = sep,

day = "14",

doi = "10.1093/rheumatology/kead482",

language = "English",

journal = "Rheumatology",

issn = "1462-0324",

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AU - CLUSTER Consortium Champions

AU - CLUSTER Consortium

AU - Beesley, Richard

AU - Feilding, Freya Luling

AU - Rosser, Elizabeth C.

AU - Shoop-Worrall, Stephanie J. W.

AU - McNeece, Alyssia

AU - Wanstall, Zoe

AU - Hyrich, Kimme

AU - Wedderburn, Lucy R.

PY - 2023/9/14

Y1 - 2023/9/14

N2 - The importance of Patient and Public Involvement and Engagement (PPIE) in the early phases of research design is significant and increasingly recognised throughout the research community. Here we describe the approach taken within the CLUSTER Consortium, setting out a stepwise process to support involvement at the earliest possible stage of project design, whilst acknowledging the real-world context of time pressures. This clearly defined strategic policy has ensured incorporation of PPIE into the early phases of research planning in CLUSTER and high-quality patient involvement has been demonstrated throughout the project.Ultimately this approach will strengthen research outcomes, maximising benefit for patients with JIA and JIA-Uveitis.

AB - The importance of Patient and Public Involvement and Engagement (PPIE) in the early phases of research design is significant and increasingly recognised throughout the research community. Here we describe the approach taken within the CLUSTER Consortium, setting out a stepwise process to support involvement at the earliest possible stage of project design, whilst acknowledging the real-world context of time pressures. This clearly defined strategic policy has ensured incorporation of PPIE into the early phases of research planning in CLUSTER and high-quality patient involvement has been demonstrated throughout the project.Ultimately this approach will strengthen research outcomes, maximising benefit for patients with JIA and JIA-Uveitis.

U2 - 10.1093/rheumatology/kead482

DO - 10.1093/rheumatology/kead482

M3 - Article

SN - 1462-0324

JO - Rheumatology

JF - Rheumatology

ER -

Development and implementation of ‘A guide to PPIE – Early Integration into Research Proposals’ in a multi-disciplinary consortium.

Abstract

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Projects

Centre for Epidemiology Versus Arthritis.

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