Genetic information, rights, and autonomy

Matti Hayry, Matti Häyry, Tuija Takala

    Research output: Contribution to journalArticlepeer-review

    Abstract

    Rights, autonomy, privacy, and confidentiality are concepts commonly used in discussions concerning genetic information. When these concepts are thought of as denoting absolute norms and values which cannot be overriden by other considerations, conflicts among them naturally occur. In this paper, these and related notions are examined in terms of the duties and obligations medical professionals and their clients can have regarding genetic knowledge. It is suggested that while the prevailing idea of autonomy is unhelpful in the analysis of these duties, and the ensuing rights, an alternative reading of personal self-determination can provide a firmer basis for ethical guidelines and policies in this field.
    Original languageEnglish
    Pages (from-to)403-414
    Number of pages11
    JournalTheoretical Medicine and Bioethics
    Volume22
    Issue number5
    DOIs
    Publication statusPublished - 2001

    Keywords

    • Autonomy
    • Confidentiality
    • Duties
    • Ethics
    • Genes
    • Information
    • Interests
    • Knowle dge
    • Law
    • Privacy
    • Rights

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