Genetic professionals' views on genetic counsellors: a French survey

Christophe Cordier, Nicolas Taris, Ramona Moldovan, Hagay Sobol, Marie-Antoinette Voelckel

Research output: Contribution to journalArticlepeer-review

Abstract

The genetic counselling profession was established in France in 2004. Eight years later, 122 genetic counsellors have graduated from the unique educational French program which awards the Professional Master Degree of Human Pathology, entitled "Master of Genetic Counselling and Predictive Medicine". As part of a global evaluation of this new profession by health genetic professionals, we undertook a national survey investigating various aspects such as employment, work responsibilities and integration. To our knowledge, this is the first study to investigate the views of genetic professionals on the genetic counsellors' role. Of 422 French professionals invited to take part in this study, 126 participated. The survey underlines that this profession is significantly recognized by physicians practicing within genetics departments. French genetic counsellors are allowed to manage consultations independently, without the necessary presence of a qualified medical geneticist but under his or her responsibility. Genetic counsellors participate in a wide range of consultations. They provide both information for relevant and for genetic testing and sometimes disclose the genetic test result to patient. Eventually, the role of genetic counsellors appears to be directly dependent from the relationship of trust between the two health professions.

Original languageEnglish
Pages (from-to)51-55
Number of pages5
JournalJournal of community genetics
Volume7
Issue number1
Early online date18 Aug 2015
DOIs
Publication statusPublished - Jan 2016

Keywords

  • genetic counsellor
  • health profession
  • national survey
  • genetic service

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