Guidelines for conducting research with the autism community

Emma Gowen, Rachel Taylor, Daniel Poole, Thomas Bleazard, Anat Greenstein, Peter Baimbridge

Research output: Other contribution

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Abstract

This guidance covers the considerations that researchers should take into account when conducting research with the autistic community (autistic adults, parents of autistic children, family members and carers). It promotes effective communication and equal partnerships between the autism and research communities so that the needs of participants pre, during and post research are taken into account and that they are supported through the research pathway. Although the focus is on research with the autism community, it is anticipated that the recommendations will be helpful for all participants, not just those with autism. This guidance is based on discussions with the autistic community and it is anticipated that they will be reviewed and modified with further discussion over time. In particular, we would like to acknowledge that although Autism@Manchester aims to follow these guidelines it is likely that we are not achieving all the recommendations and there is always room for improvement.
Original languageEnglish
TypeGuidelines for conducting research with the autism community
Media of outputpdf
Number of pages8
Publication statusPublished - 2017

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