Health Data for Public Health: Towards New Ways of Combining Data Sources to Support Research Efforts in Europe

A. Burgun; E. Bernal-Delgado; W. Kuchinke; T. van Staa; J. Cunningham; E. Lettieri; C. Mazzali; D. Oksen; F. Estupiñan; A. Barone; G. Chène

doi:10.15265/IY-2017-034

Health Data for Public Health: Towards New Ways of Combining Data Sources to Support Research Efforts in Europe

A. Burgun, E. Bernal-Delgado, W. Kuchinke, T. van Staa, J. Cunningham, E. Lettieri, C. Mazzali, D. Oksen, F. Estupiñan, A. Barone, G. Chène

Division of Informatics, Imaging & Data Sciences (L5)

Research output: Contribution to journal › Article › peer-review

Abstract

Objectives: To present the European landscape regarding the re-use of health administrative data for research.

Methods: We present some collaborative projects and solutions that have been developed by Nordic countries, Italy, Spain, France, Germany, and the UK, to facilitate access to their health data for research purposes.

Results: Research in public health is transitioning from siloed systems to more accessible and re-usable data resources. Following the example of the Nordic countries, several European countries aim at facilitating the re-use of their health administrative databases for research purposes. However, the ecosystem is still a complex patchwork, with different rules, policies, and processes for data provision.

Conclusion: The challenges are such that with the abundance of health administrative data, only a European, overarching public health research infrastructure, is able to efficiently facilitate access to this data and accelerate research based on these highly valuable resources.

Original language	English
Pages (from-to)	235-240
Number of pages	6
Journal	Yearbook of Medical Informatics
Volume	26
Issue number	1
DOIs	https://doi.org/10.15265/IY-2017-034
Publication status	Published - 18 Aug 2017

Keywords

data sources
public health informatics
Europe
health administrative data
secondary use of health data

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10.15265/IY-2017-034

Cite this

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title = "Health Data for Public Health: Towards New Ways of Combining Data Sources to Support Research Efforts in Europe",

abstract = "Objectives: To present the European landscape regarding the re-use of health administrative data for research. Methods: We present some collaborative projects and solutions that have been developed by Nordic countries, Italy, Spain, France, Germany, and the UK, to facilitate access to their health data for research purposes. Results: Research in public health is transitioning from siloed systems to more accessible and re-usable data resources. Following the example of the Nordic countries, several European countries aim at facilitating the re-use of their health administrative databases for research purposes. However, the ecosystem is still a complex patchwork, with different rules, policies, and processes for data provision. Conclusion: The challenges are such that with the abundance of health administrative data, only a European, overarching public health research infrastructure, is able to efficiently facilitate access to this data and accelerate research based on these highly valuable resources.",

keywords = "data sources, public health informatics, Europe, health administrative data, secondary use of health data",

author = "A. Burgun and E. Bernal-Delgado and W. Kuchinke and {van Staa}, T. and J. Cunningham and E. Lettieri and C. Mazzali and D. Oksen and F. Estupi{\~n}an and A. Barone and G. Ch{\`e}ne",

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month = aug,

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doi = "10.15265/IY-2017-034",

language = "English",

volume = "26",

pages = "235--240",

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T2 - Towards New Ways of Combining Data Sources to Support Research Efforts in Europe

AU - Burgun, A.

AU - Bernal-Delgado, E.

AU - Kuchinke, W.

AU - van Staa, T.

AU - Cunningham, J.

AU - Lettieri, E.

AU - Mazzali, C.

AU - Oksen, D.

AU - Estupiñan, F.

AU - Barone, A.

AU - Chène, G.

PY - 2017/8/18

Y1 - 2017/8/18

N2 - Objectives: To present the European landscape regarding the re-use of health administrative data for research. Methods: We present some collaborative projects and solutions that have been developed by Nordic countries, Italy, Spain, France, Germany, and the UK, to facilitate access to their health data for research purposes. Results: Research in public health is transitioning from siloed systems to more accessible and re-usable data resources. Following the example of the Nordic countries, several European countries aim at facilitating the re-use of their health administrative databases for research purposes. However, the ecosystem is still a complex patchwork, with different rules, policies, and processes for data provision. Conclusion: The challenges are such that with the abundance of health administrative data, only a European, overarching public health research infrastructure, is able to efficiently facilitate access to this data and accelerate research based on these highly valuable resources.

AB - Objectives: To present the European landscape regarding the re-use of health administrative data for research. Methods: We present some collaborative projects and solutions that have been developed by Nordic countries, Italy, Spain, France, Germany, and the UK, to facilitate access to their health data for research purposes. Results: Research in public health is transitioning from siloed systems to more accessible and re-usable data resources. Following the example of the Nordic countries, several European countries aim at facilitating the re-use of their health administrative databases for research purposes. However, the ecosystem is still a complex patchwork, with different rules, policies, and processes for data provision. Conclusion: The challenges are such that with the abundance of health administrative data, only a European, overarching public health research infrastructure, is able to efficiently facilitate access to this data and accelerate research based on these highly valuable resources.

KW - data sources

KW - public health informatics

KW - Europe

KW - health administrative data

KW - secondary use of health data

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JO - Yearbook of Medical Informatics

JF - Yearbook of Medical Informatics

IS - 1

ER -

Health Data for Public Health: Towards New Ways of Combining Data Sources to Support Research Efforts in Europe

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Keywords

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