TY - JOUR
T1 - How do hearing voices peer-support groups work? A three-phase model of transformation
AU - Hornstein, Gail A.
AU - Putnam, Emily Robinson
AU - Branitsky, Alison
N1 - Funding Information:
This work was supported by Grant GD8911 from the Foundation for Excellence in Mental Health Care to Mount Holyoke College. The authors gratefully acknowledge the contributions of Jacqui Dillon, Lisa Forestell, and Andrea Weisman to initial phases of the project; Maria Narimanidze to the follow-up interviews; and Caroline Mazel-Carlton, Cindy Marty Hadge, and Sera Davidow to participant recruitment.
Publisher Copyright:
© 2020 Informa UK Limited, trading as Taylor & Francis Group.
PY - 2020/7/2
Y1 - 2020/7/2
N2 - Despite decades of research and the development of many psychiatric medications, widespread suffering remains among people who hear voices. Hearing voices groups (HVGs) encourage an in-depth exploration of the meaning of voices and use peer support to develop coping strategies. Although HVGs continue to spread around the world, their effectiveness remains unknown and only a few studies have examined members’ experiences. To understand the mechanisms by which these groups operate, we recruited a diverse sample of 113 participants from across the US, who completed detailed qualitative questionnaires describing their voice-hearing histories, experiences in HVGs and changes in their lives outside the group. Asubset also participated in follow-up interviews. A collaborative team of researchers and voice hearers used phenomenological, grounded theory and thematic analyses to identify a distinctive set of elements that make HVGs unique: in their style of interaction (non-judgmental, curious, reciprocal and unstructured dialogue among people regarded as equals, in a shared community); and in the content of meetings (welcoming multiple perspectives and exploring coping strategies in non-prescriptive ways, with a focus on expertise by experience). We propose a three-phase model to explain how these elements interact within HVGs to enable significant transformation to occur.
AB - Despite decades of research and the development of many psychiatric medications, widespread suffering remains among people who hear voices. Hearing voices groups (HVGs) encourage an in-depth exploration of the meaning of voices and use peer support to develop coping strategies. Although HVGs continue to spread around the world, their effectiveness remains unknown and only a few studies have examined members’ experiences. To understand the mechanisms by which these groups operate, we recruited a diverse sample of 113 participants from across the US, who completed detailed qualitative questionnaires describing their voice-hearing histories, experiences in HVGs and changes in their lives outside the group. Asubset also participated in follow-up interviews. A collaborative team of researchers and voice hearers used phenomenological, grounded theory and thematic analyses to identify a distinctive set of elements that make HVGs unique: in their style of interaction (non-judgmental, curious, reciprocal and unstructured dialogue among people regarded as equals, in a shared community); and in the content of meetings (welcoming multiple perspectives and exploring coping strategies in non-prescriptive ways, with a focus on expertise by experience). We propose a three-phase model to explain how these elements interact within HVGs to enable significant transformation to occur.
KW - Hearing voices groups
KW - auditory hallucinations
KW - mental health
KW - peer support
KW - psychosis
KW - qualitative research
UR - http://www.scopus.com/inward/record.url?scp=85084990586&partnerID=8YFLogxK
U2 - 10.1080/17522439.2020.1749876
DO - 10.1080/17522439.2020.1749876
M3 - Article
SN - 1752-2439
VL - 12
SP - 201
EP - 211
JO - Psychosis
JF - Psychosis
IS - 3
ER -