Abstract
Many smartphone apps enable people to collect data about their own health
but –unless tethered to an electronic health record system—rarely allow sharing of this patient-generated health data with healthcare providers. The Remote Monitoring of Rheumatoid Arthritis (REMORA) programme successfully integrated a university-provided symptom tracking app into England’s National Health Service across 16 rheumatology departments in two regions, each with their own IT set-up. Informed by meetings and initial interviews with the REMORA project team, our paper presents this integration as a case study. We describe the resulting infrastructure, the process and people involved in establishing the integration, and what influencing factors were. Following further interviews, our next step is to translate the case study findings into recommendations for key stakeholders to inform similar cross-provider integrations in the future and expedite the scaling up of integrated patient-generated health data.
but –unless tethered to an electronic health record system—rarely allow sharing of this patient-generated health data with healthcare providers. The Remote Monitoring of Rheumatoid Arthritis (REMORA) programme successfully integrated a university-provided symptom tracking app into England’s National Health Service across 16 rheumatology departments in two regions, each with their own IT set-up. Informed by meetings and initial interviews with the REMORA project team, our paper presents this integration as a case study. We describe the resulting infrastructure, the process and people involved in establishing the integration, and what influencing factors were. Following further interviews, our next step is to translate the case study findings into recommendations for key stakeholders to inform similar cross-provider integrations in the future and expedite the scaling up of integrated patient-generated health data.
| Original language | English |
|---|---|
| Title of host publication | Medical Informatics Europe 2025, 19-21 May 2025, Glasgow, Scotland |
| Publication status | Accepted/In press - 13 Jan 2025 |
Keywords
- Mobile applications
- Patient-generated health data
- Qualitative research
- Systems integration