Integrating Patient-Generated Health Data from a Smartphone App Across Multiple Healthcare Providers: A Case Study

Sabine N van der Veer; Sarah Knowles; Dawn Dowding; Charlotte A Sharp; Susan Moschogianis; Deb Griffiths-Jones; William G Dixon

doi:10.3233/SHTI250436

Integrating Patient-Generated Health Data from a Smartphone App Across Multiple Healthcare Providers: A Case Study

Sabine N van der Veer, Sarah Knowles, Dawn Dowding, Charlotte A Sharp, Susan Moschogianis, Deb Griffiths-Jones, William G Dixon

Research output: Contribution to journal › Article › peer-review

Abstract

Many smartphone apps enable people to collect data about their own health but -unless tethered to an electronic health record system-rarely allow sharing of this patient-generated health data with healthcare providers. The Remote Monitoring of Rheumatoid Arthritis (REMORA) programme successfully integrated a university-provided symptom tracking app into England's National Health Service across 16 rheumatology departments in two regions, each with their own IT set-up. Informed by meetings and initial interviews with the REMORA project team, our paper presents this integration as a case study. We describe the resulting infrastructure, the process and people involved in establishing the integration, and what influencing factors were. Following further interviews, our next step is to translate the case study findings into recommendations for key stakeholders to inform similar cross-provider integrations in the future and expedite the scaling up of integrated patient-generated health data.

Original language	English
Pages (from-to)	687-692
Number of pages	6
Journal	Studies in Health Technology and Informatics
Volume	327
DOIs	https://doi.org/10.3233/SHTI250436
Publication status	Published - 15 May 2025

Keywords

Mobile Applications
Humans
Patient Generated Health Data
Smartphone
Electronic Health Records/organization & administration
Arthritis, Rheumatoid/diagnosis
England
Telemedicine
Organizational Case Studies
Systems Integration

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10.3233/SHTI250436

Cite this

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title = "Integrating Patient-Generated Health Data from a Smartphone App Across Multiple Healthcare Providers: A Case Study",

abstract = "Many smartphone apps enable people to collect data about their own health but -unless tethered to an electronic health record system-rarely allow sharing of this patient-generated health data with healthcare providers. The Remote Monitoring of Rheumatoid Arthritis (REMORA) programme successfully integrated a university-provided symptom tracking app into England's National Health Service across 16 rheumatology departments in two regions, each with their own IT set-up. Informed by meetings and initial interviews with the REMORA project team, our paper presents this integration as a case study. We describe the resulting infrastructure, the process and people involved in establishing the integration, and what influencing factors were. Following further interviews, our next step is to translate the case study findings into recommendations for key stakeholders to inform similar cross-provider integrations in the future and expedite the scaling up of integrated patient-generated health data.",

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year = "2025",

month = may,

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doi = "10.3233/SHTI250436",

language = "English",

volume = "327",

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T2 - A Case Study

AU - van der Veer, Sabine N

AU - Knowles, Sarah

AU - Dowding, Dawn

AU - Sharp, Charlotte A

AU - Moschogianis, Susan

AU - Griffiths-Jones, Deb

AU - Dixon, William G

PY - 2025/5/15

Y1 - 2025/5/15

N2 - Many smartphone apps enable people to collect data about their own health but -unless tethered to an electronic health record system-rarely allow sharing of this patient-generated health data with healthcare providers. The Remote Monitoring of Rheumatoid Arthritis (REMORA) programme successfully integrated a university-provided symptom tracking app into England's National Health Service across 16 rheumatology departments in two regions, each with their own IT set-up. Informed by meetings and initial interviews with the REMORA project team, our paper presents this integration as a case study. We describe the resulting infrastructure, the process and people involved in establishing the integration, and what influencing factors were. Following further interviews, our next step is to translate the case study findings into recommendations for key stakeholders to inform similar cross-provider integrations in the future and expedite the scaling up of integrated patient-generated health data.

AB - Many smartphone apps enable people to collect data about their own health but -unless tethered to an electronic health record system-rarely allow sharing of this patient-generated health data with healthcare providers. The Remote Monitoring of Rheumatoid Arthritis (REMORA) programme successfully integrated a university-provided symptom tracking app into England's National Health Service across 16 rheumatology departments in two regions, each with their own IT set-up. Informed by meetings and initial interviews with the REMORA project team, our paper presents this integration as a case study. We describe the resulting infrastructure, the process and people involved in establishing the integration, and what influencing factors were. Following further interviews, our next step is to translate the case study findings into recommendations for key stakeholders to inform similar cross-provider integrations in the future and expedite the scaling up of integrated patient-generated health data.

KW - Mobile Applications

KW - Humans

KW - Patient Generated Health Data

KW - Smartphone

KW - Electronic Health Records/organization & administration

KW - Arthritis, Rheumatoid/diagnosis

KW - England

KW - Telemedicine

KW - Organizational Case Studies

KW - Systems Integration

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DO - 10.3233/SHTI250436

M3 - Article

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SN - 0926-9630

VL - 327

SP - 687

EP - 692

JO - Studies in Health Technology and Informatics

JF - Studies in Health Technology and Informatics

ER -

Integrating Patient-Generated Health Data from a Smartphone App Across Multiple Healthcare Providers: A Case Study

Abstract

Keywords

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