Involvement in treatment decisions: What do adults with asthma want and what do they get? Results of a cross sectional survey

A. L. Caress, K. Beaver, K. Luker, M. Campbell, A. Woodcock

    Research output: Contribution to journalArticlepeer-review

    Abstract

    Background: Current healthcare policy advocates patient participation in treatment decision making. However, in asthma there is little evidence regarding patients' views on such involvement. This study explored the preferred and perceived level of involvement in treatment decisions, rationales for role preference, perceived facilitators of/barriers to involvement, and the interrelationship of role preference and demographic variables in a sample of patients with asthma. Methods: A cross sectional survey was performed of 230 adults with clinician diagnosed asthma from 10 primary care sites and one specialist respiratory centre in north-west England. Preferred role in treatment decisions was assessed using the Control Preferences Scale. Results: Fifty five (23.9%) preferred an active role, 82 (35.7%) a collaborative role, and 93 (40.4%) a passive role; 19 (8.2%) perceived their role as active compared with 45 (19.6%) collaborative and 166 (72.2%) passive. Only 33.5% (n = 77) of respondents attained their most preferred role; 55.2% (n = 127) were less involved than they preferred. Patient related, professional related, and organisational factors, especially quality and duration of consultations, facilitated or hampered involvement. Role preferences were not strongly associated with demographic variables or asthma severity. Conclusions: This study in patients with asthma highlights the fact that there is a need for professional and patient education regarding partnership working, skilful communication, and innovative approaches to service delivery.
    Original languageEnglish
    Pages (from-to)199-205
    Number of pages6
    JournalThorax
    Volume60
    Issue number3
    DOIs
    Publication statusPublished - Mar 2005

    Keywords

    • Adult
    • Aged
    • Aged, 80 and over
    • psychology: Asthma
    • Cross-Sectional Studies
    • Data Collection
    • England
    • Female
    • Humans
    • Male
    • Middle Aged
    • Patient Participation
    • Patient Satisfaction
    • Perception
    • Research Support, Non-U.S. Gov't

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