Involving healthcare professionals and family carers in setting research priorities for end-of-life care

Janet Diffin, Michael Spence, Rebecca Spencer, Peter Mellor, Gunn Grande

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Abstract

It is important to ensure regional variances are considered when setting future end-of-life research priorities, given the differing demographics and service provision. This project sought to identify end-of-life research priorities within Greater Manchester (United Kingdom). Following an initial scoping exercise, six topics within the 10 national priorities outlined by The Palliative and end-of-life care Priority Setting Partnership were selected for exploration. A workshop involving 32 healthcare professionals and a consultation process with 26 family carers was conducted. Healthcare professionals and carers selected and discussed the topics important to them. The topics selected most frequently by both healthcare professionals and carers were ‘Access to 24 hour care’, ‘Planning end-of-life care in advance’ and ‘Staff and carer education’. Healthcare professionals also developed research questions for their topics of choice which were refined to incorporate carers’ views. These questions are an important starting point for future end-of-life research within Greater Manchester.
Original languageEnglish
JournalInternational Journal of Palliative Nursing
Volume23
Issue number2
Early online date28 Feb 2017
DOIs
Publication statusPublished - 2017

Keywords

  • end-of-life
  • Caregivers
  • health personnel
  • palliative care
  • terminal care
  • priorities
  • research

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