Involving parents in managing their child’s long-term condition - a concept synthesis of family-centred care and partnership-in-care

Joanne Smith (Collaborator), Veronica Swallow (Collaborator), Imelda Coyne (Collaborator)

    Research output: Contribution to journalArticlepeer-review

    Abstract

    Background Fostering effective engagement, collaboration and empowerment are central to supporting parents caring for children with long-term conditions. Methods A concept synthesis was undertaken to identify the shared antecedents and attributes underpinning models of family-centred care and partnership-in-care. Results Thirty studies were reviewed; antecedents of models related to unclear roles, entrenched professional practices, and lack of guidelines supporting their implementation; with central attributes being building trust, listening to parent concerns and valuing parents’ knowledge of their child. Conclusion The key attributes are outlined in a practical framework of involvement which may promote parent-professional collaboration for families of children with long-term conditions
    Original languageEnglish
    JournalJournal of Pediatric Nursing
    DOIs
    Publication statusPublished - Jan 2015

    Keywords

    • Family-centred care; Partnership, parents, long-term, chronic

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