Loss and rebuilding: A qualitative study of late diagnosis of cleft palate

Stephanie Tierney, Maria Blackhurst, Rachael Scahill, Peter Callery

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    Purpose To explore the experiences of parents whose child received a late diagnosis of cleft palate (>24 hr after birth). Design and Methods Parents of 17 children and three nurses specialised in cleft care (specialist nurses) took part in a qualitative, semi-structured interview. Framework analysis was applied to data. Results Loss and rebuilding was an overarching concept—from the crescendo leading up to the bombshell of diagnosis, followed by the aftermath of dealing with the child's long-term condition. Practice implications Specialist nurses can help parents to trust healthcare professionals and to feel confident in their ability to nurture by listening, informing, and supporting.
    Original languageEnglish
    Pages (from-to)280-289
    Number of pages9
    JournalJournal for Specialists in Pediatric Nursing
    Issue number4
    Publication statusPublished - 7 Oct 2015


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