Mapping Patients’ Online Record Access Worldwide: Preliminary Results from an International Survey of Healthcare Experts

  • Anna Kharko
  • , Charlotte Blease
  • , Monika Johansen
  • , Anne Moen
  • , Isabella Scandurra
  • , Brian McMillan
  • , Maria Hägglund

Research output: Chapter in Book/Conference proceedingChapterpeer-review

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Abstract

Abstract. While research on the effects of patient access to health records is increasing, a basic understanding of the spread of patient-accessible electronic health records worldwide is lacking. In this survey of healthcare experts with professional and personal experience from 29 countries, we explored the state of patient online record access (ORA). We asked participants whether ORA exists in their country and which information is available through it. Experts in all polled countries reported having some national access to health records, with 6 (21%) countries providing exclusively paper-based records and 23 (79%) countries having ORA. Overview of test/lab results and prescription/medication lists were the most commonly available information. Free-text clinical notes were accessible in less than half of the surveyed countries (12, 41%). We will continue to map the state of patient ORA, focusing on traditionally underrepresented countries.
Original languageEnglish
Title of host publicationMEDINFO 2023 — The Future Is Accessible
Subtitle of host publicationProceedings of the 19th World Congress on Medical and Health Informatics
EditorsJen Bichel-Findlay, Paula Otero, Philip Scott, Elaine Huesing
PublisherIOS Press
Pages114-118
Number of pages5
ISBN (Electronic)978-1-64368-457-4
ISBN (Print)978-1-64368-456-7
Publication statusPublished - 25 Jan 2024

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