Neurosurgical contribution within a complex NF1 supraregional service.

H Raffalli-Ebezant; KJ George; E Burkitt-Wright; F Roncaroli; C Soh; J Ealing; G Vassallo; JE Elloo; K Karabatsou; D Gareth Evans

doi:10.1016/j.clineuro.2019.03.002

Neurosurgical contribution within a complex NF1 supraregional service.

H Raffalli-Ebezant, KJ George, E Burkitt-Wright, F Roncaroli, C Soh, J Ealing, G Vassallo, JE Elloo, K Karabatsou, D Gareth Evans

Research output: Contribution to journal › Article › peer-review

Abstract

Objectives The goal of this study was to review and present neurosurgical related activity within a multidisciplinary nationally commissioned specialty neurofibromatosis type I (NF1) center. Patients & methods We reviewed all NF1 Neurosurgical MDTs, NF1 Neurosurgical clinics and all neurosurgical procedures carried out in NF1 patients over an 8-year period. Results Since the inception of the service in 2009, 1505 cases were discussed at our NF-1 multidisciplinary meeting, 171 clinic appointments in complex NF1 patients with neurosurgical pathologies and 43(cranial and spinal) operations were performed. Conclusions The formation of a supraregional multidisciplinary team allows for a better understanding of the disease, a comprehensive evaluation of neuroimaging findings and a steep learning curve in the management of NF1 surgical conditions. We provide holistic treatment for these patients via direct care, specialist advice and liaison with local units.

Original language	English
Journal	Clinical Neurology and Neurosurgery
DOIs	https://doi.org/10.1016/j.clineuro.2019.03.002
Publication status	Published - 4 Mar 2019

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title = "Neurosurgical contribution within a complex NF1 supraregional service.",

abstract = "Objectives The goal of this study was to review and present neurosurgical related activity within a multidisciplinary nationally commissioned specialty neurofibromatosis type I (NF1) center. Patients & methods We reviewed all NF1 Neurosurgical MDTs, NF1 Neurosurgical clinics and all neurosurgical procedures carried out in NF1 patients over an 8-year period. Results Since the inception of the service in 2009, 1505 cases were discussed at our NF-1 multidisciplinary meeting, 171 clinic appointments in complex NF1 patients with neurosurgical pathologies and 43(cranial and spinal) operations were performed. Conclusions The formation of a supraregional multidisciplinary team allows for a better understanding of the disease, a comprehensive evaluation of neuroimaging findings and a steep learning curve in the management of NF1 surgical conditions. We provide holistic treatment for these patients via direct care, specialist advice and liaison with local units.",

author = "H Raffalli-Ebezant and KJ George and E Burkitt-Wright and F Roncaroli and C Soh and J Ealing and G Vassallo and JE Elloo and K Karabatsou and Evans, {D Gareth}",

year = "2019",

month = mar,

day = "4",

doi = "10.1016/j.clineuro.2019.03.002",

language = "English",

journal = "Clinical Neurology and Neurosurgery",

issn = "0303-8467",

publisher = "Elsevier BV",

}

TY - JOUR

T1 - Neurosurgical contribution within a complex NF1 supraregional service.

AU - Raffalli-Ebezant, H

AU - George, KJ

AU - Burkitt-Wright, E

AU - Roncaroli, F

AU - Soh, C

AU - Ealing, J

AU - Vassallo, G

AU - Elloo, JE

AU - Karabatsou, K

AU - Evans, D Gareth

PY - 2019/3/4

Y1 - 2019/3/4

N2 - Objectives The goal of this study was to review and present neurosurgical related activity within a multidisciplinary nationally commissioned specialty neurofibromatosis type I (NF1) center. Patients & methods We reviewed all NF1 Neurosurgical MDTs, NF1 Neurosurgical clinics and all neurosurgical procedures carried out in NF1 patients over an 8-year period. Results Since the inception of the service in 2009, 1505 cases were discussed at our NF-1 multidisciplinary meeting, 171 clinic appointments in complex NF1 patients with neurosurgical pathologies and 43(cranial and spinal) operations were performed. Conclusions The formation of a supraregional multidisciplinary team allows for a better understanding of the disease, a comprehensive evaluation of neuroimaging findings and a steep learning curve in the management of NF1 surgical conditions. We provide holistic treatment for these patients via direct care, specialist advice and liaison with local units.

AB - Objectives The goal of this study was to review and present neurosurgical related activity within a multidisciplinary nationally commissioned specialty neurofibromatosis type I (NF1) center. Patients & methods We reviewed all NF1 Neurosurgical MDTs, NF1 Neurosurgical clinics and all neurosurgical procedures carried out in NF1 patients over an 8-year period. Results Since the inception of the service in 2009, 1505 cases were discussed at our NF-1 multidisciplinary meeting, 171 clinic appointments in complex NF1 patients with neurosurgical pathologies and 43(cranial and spinal) operations were performed. Conclusions The formation of a supraregional multidisciplinary team allows for a better understanding of the disease, a comprehensive evaluation of neuroimaging findings and a steep learning curve in the management of NF1 surgical conditions. We provide holistic treatment for these patients via direct care, specialist advice and liaison with local units.

U2 - 10.1016/j.clineuro.2019.03.002

DO - 10.1016/j.clineuro.2019.03.002

M3 - Article

C2 - 30870761

SN - 0303-8467

JO - Clinical Neurology and Neurosurgery

JF - Clinical Neurology and Neurosurgery

ER -

Neurosurgical contribution within a complex NF1 supraregional service.

Abstract

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