Outcomes of importance to parents and children: Qualitative findings from the mOMEnt study.

Stephanie Tierney

    Research output: Chapter in Book/Report/Conference proceedingConference contributionpeer-review


    Background: Most children with cleft palate (CP) experience otitis media with effusion (OME). However, what they and their parents consider to be important treatment outcomes are unclear. Aims: To explore what children with a CP and their parents thought were important outcomes following treatment for OME. Design: A qualitative study was conducted as part of a larger project to develop a set of core outcomes to be measured in future studies on OME in CP. Data collection: Semi-structured interviews with 22 children and 43 parents were audio-recorded and transcribed verbatim. They were recruited from two cleft centres in England. Data analysis: Framework analysis was used to develop codes and themes. Results: Parents and children regarded hearing as a key outcome. However, they suggested that they would also look for an improvement in social (e.g. mixing with others) and psychological (e.g. self-confidence) aspects of the child’s life. Parents mentioned the importance of improvements in education, whilst children wanted to ‘fit in’ with friends. Conclusion: Findings show that although clinical outcomes are important to those affected by OME, consideration should also be given to wider psychosocial outcomes when assessing the effectiveness of treatment.
    Original languageEnglish
    Title of host publicationhost publication
    Publication statusPublished - Apr 2014
    EventCraniofacial Society Conference - Keble College, Oxford
    Duration: 7 Apr 20149 Apr 2014


    ConferenceCraniofacial Society Conference
    CityKeble College, Oxford


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