Participatory social network map making with family carers of people living with dementia.

Sarah Campbell, Andrew Clark, John Keady, Agneta Kullberg, Kainde Manji, Kirstein Rummery, Richard Ward

Research output: Contribution to journalArticlepeer-review

Abstract

This article focuses on the use of a participatory social network mapping method with family carers. This is one of a suite of methods developed in a 5-year qualitative multi-centre project exploring how neighbourhoods support, enable or disable people with dementia and their families to live well in their communities. The article considers how mapping provides insights into family support networks, revealing the fluidity of support and care within relationships as well as providing opportunity for individuals to represent the complexities of their relationships with more and less significant others. However, the potential offered by the approach goes beyond those of visual representations of networks and contacts. Paying attention to the co-production process, as well as the reflexive dialogue that emerges in the exchange between researcher, participants, and the maps themselves, we consider how the maps emerge as affective artifacts, weighted with emotion.
Original languageEnglish
Pages (from-to)205979911984444
JournalMethodological Innovations
Volume12
Issue number1
Early online date22 Apr 2019
DOIs
Publication statusPublished - 22 Apr 2019

Keywords

  • Participatory social network mapping
  • Neighbourhood
  • Dementia
  • Care
  • Social relationships
  • Emotion
  • Reflexivity

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