Abstract
Objectives: Disease-related stigma is associated with poor mental health and wellbeing in people with Parkinson’s disease. Urdu language tools for measuring stigma are not yet available, despite being spoken by over 170 million people worldwide. The aim of this study was therefore to develop and validate an Urdu version of the Stigma Scale for Chronic Illness-8 (SSCI-8) for people living with Parkinson’s disease.
Method: The Urdu SSCI-8 was developed following the ‘Functional Assessment of
Chronic Illness Therapy translation procedure. To assess its reliability and validity, 250people diagnosed with Parkinson’s disease (72% men and 28% women), aged 50-65 years, were recruited from public hospitals in Pakistan. Participants completed the Urdu SSCI-8, along with Urdu versions of the Hamilton Depression Rating Scale, and Word Health Organization Quality of Life brief scale.
Results: Confirmatory Factor Analysis revealed that a single factor solution of the Urdu SSCI-8 provided a good fit to the data, with a high level of internal consistency (Cronbach Alpha=0.95), and good fit indices (RMSEA = 0.05, CFI = 0.99, TLI = 0.98, GFI = 0.96). Composite Reliability Co-efficient (0.95) and Average Variance Extracted (0.71) values indicated strong convergent reliability and validity. Scores on the Urdu SSCI-8 correlated positively with depression (r = 0.53, p < 0.001), and negatively with quality of life (r=- 0.61, p < 0.001), indicating high levels of convergent and discriminant validity.
Conclusion: The Urdu SSCI-8 is a reliable, valid, and culturally appropriate tool for
measuring stigma among patients with Parkinson’s disease.
Method: The Urdu SSCI-8 was developed following the ‘Functional Assessment of
Chronic Illness Therapy translation procedure. To assess its reliability and validity, 250people diagnosed with Parkinson’s disease (72% men and 28% women), aged 50-65 years, were recruited from public hospitals in Pakistan. Participants completed the Urdu SSCI-8, along with Urdu versions of the Hamilton Depression Rating Scale, and Word Health Organization Quality of Life brief scale.
Results: Confirmatory Factor Analysis revealed that a single factor solution of the Urdu SSCI-8 provided a good fit to the data, with a high level of internal consistency (Cronbach Alpha=0.95), and good fit indices (RMSEA = 0.05, CFI = 0.99, TLI = 0.98, GFI = 0.96). Composite Reliability Co-efficient (0.95) and Average Variance Extracted (0.71) values indicated strong convergent reliability and validity. Scores on the Urdu SSCI-8 correlated positively with depression (r = 0.53, p < 0.001), and negatively with quality of life (r=- 0.61, p < 0.001), indicating high levels of convergent and discriminant validity.
Conclusion: The Urdu SSCI-8 is a reliable, valid, and culturally appropriate tool for
measuring stigma among patients with Parkinson’s disease.
| Original language | English |
|---|---|
| Journal | Aging and Mental Health |
| Early online date | 13 Jan 2025 |
| DOIs | |
| Publication status | E-pub ahead of print - 13 Jan 2025 |
Keywords
- Stigma
- Chronic illness
- psychometric validation
- Parkinson’s disease
- Measurement
- Urdu
- translation