Research project on advocacy and autism

Rosalind Clare Chapman, Louise Townson, Sue MacAuley, Elizabeth Harkness, Andy Docherty, John Dias, Malcolm Eardley, Rohhss Chapman

    Research output: Contribution to journalArticlepeer-review


    This article presents the findings of a qualitative research project about the difficulties in accessing advocacy faced by adults labelled as having autism and Asperger's Syndrome in the Northwest of England. It is also an example of partnership working between three organisations. The article examines both the process of team-led (emancipatory) research and the project findings. Seven main themes emerged throughout the research: late diagnosis and lack of service support; bad experiences with systems of care; feel ings of 'not belonging' (identity issues); barriers around communication and sensitivity towards individuals; lack of awareness and access to advocacy and rights; difficulties of 'fitting into' what is already available; and interest in developing knowledge around advocacy. Examination of the main themes pointed to a disturbing link between poor service response, episodes of crisis and mental ill health. The Carlisle People First Research Team is made up of 6 researchers who are labelled as having 'learning difficulties' who work in partnership with one other researcher.[image omitted][image omitted].
    Original languageEnglish
    Pages (from-to)523-536
    Number of pages13
    JournalDisability and Society
    Issue number5
    Publication statusPublished - Aug 2007


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