Researching disabled children and young people’s views on decision-making: Working reflexively to rethink vulnerability

Sarah Louise Skyrme, Simon Woods

Research output: Contribution to journalArticlepeer-review

Abstract

Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children’s vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.
Original languageEnglish
Pages (from-to)355-368
Number of pages14
JournalChildhood
Volume25
Issue number3
DOIs
Publication statusPublished - 24 Apr 2018

Keywords

  • Decision-making
  • Disabled children and young people
  • Duchenne muscular dystrophy
  • medical research
  • qualitative research

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