Service and wider societal costs of very young children with autism in the UK

PACT Consortium, Barbara Barrett, Sarah Byford, Jessica Sharac, Kristelle Hudry, Kathy Leadbitter, Kathryn Temple, Catherine Aldred, Vicky Slonims, Jonathan Green

Research output: Contribution to journalArticlepeer-review


Autism spectrum disorders (ASD) are associated with a substantial economic burden, but there is little evidence of the costs in the early years; the period in which children are increasingly likely to be diagnosed. We describe the services used by 152 children aged 24-60 months with autism, report family out-of-pocket expenses and productivity losses, and explore the relationship between family characteristics and costs. Children received a wide range of hospital and community services including relatively high levels of contact with speech and language therapists and paediatricians. Total service costs varied greatly (mean £430 per month; range £53 to £1,116), with some families receiving little statutory support. Higher costs were associated with increasing age and symptom severity.
Original languageEnglish
Pages (from-to)797-804
Number of pages8
JournalJournal of Autism and Developmental Disorders
Issue number5
Early online date17 Nov 2011
Publication statusPublished - May 2012


  • autism
  • cost
  • service use
  • very young children


Dive into the research topics of 'Service and wider societal costs of very young children with autism in the UK'. Together they form a unique fingerprint.
  • Preschool Autism Communication Trial (PACT).

    Green, J., Macdonald, W. & Pickles, A.


    Project: Research

Cite this