Service evaluation of patients' views on the Patients' Concerns Inventory (at diagnosis)

M. J. Byrne, S. N. Rogers

Research output: Contribution to journalArticlepeer-review


The amount of information wanted by patients after the diagnosis of cancer of the head and neck varies, and valid consent is not possible without information. The Patients' Concerns Inventory (diagnosis) (PCI-D) is a list intended to prompt patients to ask about aspects of their diagnosis and its potential treatments and outcomes. It has not previously been evaluated in clinical practice. Our aim was to assess how often patients recall using it and their satisfaction with both it and the information they received. New patients with oral cancer who attended one consultant's clinic between 2014 and 2015 were evaluated and the response rate was 20/48. A total of 16/18 reported that they were very satisfied or satisfied with it. The Satisfaction with Cancer Information Profile Part B (SCIP-B) showed that the inventory seemed to improve patients' satisfaction with the information that they were given. Further evaluation is required.

Original languageEnglish
JournalBritish Journal of Oral and Maxillofacial Surgery
Early online date3 Jul 2017
Publication statusPublished - 2017


  • Audit
  • Head and neck cancer
  • Information
  • Patient Concerns Inventory


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