Somatically ill persons' self-nominated quality of life domains: Review of the literature and guidelines for future studies

Elsbeth F. Taminiau-Bloem, Mechteld R M Visser, Carol Tishelman, Margot A. Koeneman, Florence J. Van Zuuren, Mirjam A G Sprangers

    Research output: Contribution to journalArticlepeer-review


    Objective To review which domains somatically ill persons nominate as constituting their QoL. Specific objective is to examine whether the method of enquiry affect these domains. Methods We conducted two literature searches in the databases PubMed/Medline, CINAHL and Psychinfo for qualitative studies examining patients' self-defined QoL domains using (1) SEIQoL and (2) study-specific questions. For each database, two researchers independently assessed the eligibility of the retrieved Abstract:s and three researchers subsequently classified all QoL domains. Results Thirty-six eligible papers were identified: 27 studies using the SEIQoL, and nine presenting data derived from study-specific questions. The influence of the method of enquiry on patients' self-nominated QoL domains appears limited: most domains were presented in both types of studies, albeit with different frequencies. Conclusions This review provides a comprehensive overview of somatically ill persons' self-nominated QoL domains. However, limitations inherent to reviewing qualitative studies (e.g., the varying level of Abstract:ion of patients' self-defined QoL domains), limitations of the included studies and limitations inherent to the review process, hinder cross-study comparisons. Therefore, we provide guidelines to address shortcomings of qualitative reports amenable to improvement and to stimulate further improvement of conducting and reporting qualitative research aimed at exploring respondents' self-nominated QoL domains.
    Original languageEnglish
    Pages (from-to)253-291
    Number of pages38
    JournalQuality of Life Research
    Issue number2
    Publication statusPublished - Mar 2010


    • Cancer
    • Individualized measures
    • Quality of life
    • Review
    • SEIQoL


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