Abstract
Objective
As clinicians we strive to deliver patient-centred care. It is important to engage with patients, through qualitative research, to understand what is meaningful to them. Interviewing is one approach to qualitative data collection, providing rich data through storytelling facilitated by the social interaction between interviewer and interviewee. Emotional distress is a risk associated with research interviews and the emotional impact of participation in research interviews should be considered.
Method
Semi-structured interviews were conducted with a purposive sample of peoplewith cystic fibrosis (pwCF) aged ≥40 years to explore the experience of ageing with CF. To support participants, an information sheet and topic guide were provided. Psychosocial support could be accessed before the interview. A distress protocol was developed. Participants were contacted post-interview to check on their wellbeing.
Results
A total of 24 pwCFwere invited to participate and all agreed. Three rearranged their interview, two went onto cancel this interview without rebooking. Thus, 22 interviews were completed. Psychosocial input was not required before or after any interviews. PwCF readily talked about their experiences of living with CF at various life stages. They reflected on the impact that changes in CF care had had on themselves and other people. PwCFappeared to value the interviewexperience with several thanking the interviewer, saying they had enjoyed the interview, expressing it had allowed them to reflect. Some participants became upset during the interview, most often when talking about bereavement. It was not necessary to invoke the distress protocol and all were able to continue with the interview. One pwCF declined to talk about bereavement to avoid becoming upset.
Conclusion
PwCF readily engaged with research interviews and appeared to benefit from the opportunity to reflect on their experiences. Research interviews may have therapeutic benefits for pwCF.
As clinicians we strive to deliver patient-centred care. It is important to engage with patients, through qualitative research, to understand what is meaningful to them. Interviewing is one approach to qualitative data collection, providing rich data through storytelling facilitated by the social interaction between interviewer and interviewee. Emotional distress is a risk associated with research interviews and the emotional impact of participation in research interviews should be considered.
Method
Semi-structured interviews were conducted with a purposive sample of peoplewith cystic fibrosis (pwCF) aged ≥40 years to explore the experience of ageing with CF. To support participants, an information sheet and topic guide were provided. Psychosocial support could be accessed before the interview. A distress protocol was developed. Participants were contacted post-interview to check on their wellbeing.
Results
A total of 24 pwCFwere invited to participate and all agreed. Three rearranged their interview, two went onto cancel this interview without rebooking. Thus, 22 interviews were completed. Psychosocial input was not required before or after any interviews. PwCF readily talked about their experiences of living with CF at various life stages. They reflected on the impact that changes in CF care had had on themselves and other people. PwCFappeared to value the interviewexperience with several thanking the interviewer, saying they had enjoyed the interview, expressing it had allowed them to reflect. Some participants became upset during the interview, most often when talking about bereavement. It was not necessary to invoke the distress protocol and all were able to continue with the interview. One pwCF declined to talk about bereavement to avoid becoming upset.
Conclusion
PwCF readily engaged with research interviews and appeared to benefit from the opportunity to reflect on their experiences. Research interviews may have therapeutic benefits for pwCF.
| Original language | English |
|---|---|
| Title of host publication | Journal of Cystic Fibrosis |
| Volume | 23 |
| Edition | S1 |
| DOIs | |
| Publication status | Published - 1 Jun 2024 |
