The Autism Family Experience Questionnaire (AFEQ): An ecologically-valid, parent-nominated measure of family experience, quality of life and prioritised outcomes for early intervention

Kathy Leadbitter, Catherine Aldred, Helen McConachie, Ann Le Couteur, Dharmi Kapadia, Tony Charman, Wendy Macdonald, Erica Salomone, Richard Emsley, Jonathan Green

Research output: Contribution to journalArticlepeer-review

Abstract

There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and reflected parental priorities. It was then administered to the parents of children enrolled in the Pre-school Autism Communication Trial and its 6-year follow-up study. The AFEQ showed good convergent validity with well-established measures of child adaptive functioning, parental mental health and parental wellbeing. It was sensitive to change in response to a parent-mediated intervention for young children with autism, showing treatment effect at treatment endpoint which increased at six-year follow-up.
Original languageEnglish
Pages (from-to)1052-1062
Number of pages10
JournalJournal of Autism and Developmental Disorders
Volume48
Issue number4
Early online date18 Nov 2017
DOIs
Publication statusPublished - 18 Nov 2017

Research Beacons, Institutes and Platforms

  • Cathie Marsh Institute
  • Manchester Institute for Collaborative Research on Ageing

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