The European Registry on Cushing's syndrome: 2-Year experience. Baseline demographic and clinical characteristics

Elena Valassi, Alicia Santos, Maria Yaneva, Miklós Tóth, Christian J. Strasburger, Philippe Chanson, John A H Wass, Olivier Chabre, Marija Pfeifer, Richard A. Feelders, Stylianos Tsagarakis, Peter J. Trainer, Holger Franz, Kathrin Zopf, Sabina Zacharieva, StevenWJ Lamberts, Antoine Tabarin, Susan M. Webb

    Research output: Contribution to journalArticlepeer-review

    Abstract

    Objective: The European Registry on Cushing's syndrome (ERCUSYN) is designed to collect prospective and follow-up data at EU level on Cushing's syndrome (CS). Design and methods: Baseline data on 481 CS patients (390 females, 91 males; mean age (±S.D.): 44 ±14 years) collected from 36 centres in 23 countries, including new patients from 2008 and retrospective cases since 2000. Patients were divided into four major aetiologic groups: pituitarydependent CS (PIT-CS) (66%), adrenal-dependent CS (ADR-CS) (27%), CS from an ectopic source (ECT-CS) (5%) and CS from other aetiologies (2%). Results: Proportion of men in the ECT-CS group was higher than in the other groups (P
    Original languageEnglish
    Pages (from-to)383-392
    Number of pages9
    JournalEuropean Journal of Endocrinology
    Volume165
    Issue number3
    DOIs
    Publication statusPublished - Sept 2011

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