TY - JOUR
T1 - The nebula of chronicity: Dealing with metastatic breast cancer in the UK
AU - Greco, Cinzia
N1 - Funding Information:
The data presented are based on a research project funded through a Newton International Fellowship of the British Academy, as well as by a Research Fellowship in Humanities and Social Science of the Wellcome Trust. Part of the data have been presented at a Research Seminar of the CHSTM and at the international conference ‘Chronic Living: Quality, Vitality and Health in the 21st Century’, University of Copenhagen, 4–6 March 2021. I thank the participants of the seminar and the conference, Nils Graber, and the two anonymous reviewers of Anthropology & Medicine for their feedback.
Funding Information:
The data presented are based on a research project funded through a Newton International Fellowship of the British Academy, as well as by a Research Fellowship in Humanities and Social Science of the Wellcome Trust. Part of the data have been presented at a Research Seminar of the CHSTM and at the international conference ‘Chronic Living: Quality, Vitality and Health in the 21st Century’, University of Copenhagen, 4–6 March 2021. I thank the participants of the seminar and the conference, Nils Graber, and the two anonymous reviewers of Anthropology & Medicine for their feedback. This work was supported by the British Academy under Grant NF161448 and the Wellcome Trust under Grant 212736/Z/18/Z.
Publisher Copyright:
© 2022 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
PY - 2022/3
Y1 - 2022/3
N2 - In this article, I explore how the concept of chronicity is mobilised by different actors in reference to metastatic breast cancer (MBC) and the transformation of the condition as a consequence of medical innovations. I do so by using data collected in the UK between 2017 and 2019 through in-depth interviews with medical professionals involved in the treatment of MBC and with patients living with MBC. I show how chronicity appears as a multidimensional and uncertain concept, which I analyse through the image of the nebula. While the medical literature tends to consider MBC chronic or on route to chronicisation, the medical professionals interviewed were uncertain as to whether MBC can be considered a chronic disease, and attempted to discuss chronicity through survival times, the kind of management possible for the disease, and how it compares to other conditions more commonly considered chronic. In some cases, the patients considered the idea of chronicity a source of hope or a way to link their condition to those of people with other diseases; however, they generally rejected the definition as inappropriate for their experience of the illness. Analysing the fluid uses of the concept of chronicity in the case of MBC contributes to the debate within medical anthropology on how medical categories acquire different values and uses and on the circulation of meanings between the biomedical context and the patient experience.
AB - In this article, I explore how the concept of chronicity is mobilised by different actors in reference to metastatic breast cancer (MBC) and the transformation of the condition as a consequence of medical innovations. I do so by using data collected in the UK between 2017 and 2019 through in-depth interviews with medical professionals involved in the treatment of MBC and with patients living with MBC. I show how chronicity appears as a multidimensional and uncertain concept, which I analyse through the image of the nebula. While the medical literature tends to consider MBC chronic or on route to chronicisation, the medical professionals interviewed were uncertain as to whether MBC can be considered a chronic disease, and attempted to discuss chronicity through survival times, the kind of management possible for the disease, and how it compares to other conditions more commonly considered chronic. In some cases, the patients considered the idea of chronicity a source of hope or a way to link their condition to those of people with other diseases; however, they generally rejected the definition as inappropriate for their experience of the illness. Analysing the fluid uses of the concept of chronicity in the case of MBC contributes to the debate within medical anthropology on how medical categories acquire different values and uses and on the circulation of meanings between the biomedical context and the patient experience.
KW - Metastatic breast cancer
KW - United Kingdom
KW - chronic disease
KW - medical professionals
KW - patients’ experiences
KW - Uncertainty
KW - Breast Neoplasms/pathology
KW - Humans
KW - Female
KW - Anthropology, Medical
UR - http://www.scopus.com/inward/record.url?scp=85126439641&partnerID=8YFLogxK
UR - https://www.mendeley.com/catalogue/71598ae6-2a0e-3840-81b1-f2c08b5695e4/
U2 - 10.1080/13648470.2022.2041547
DO - 10.1080/13648470.2022.2041547
M3 - Article
C2 - 35274583
SN - 1364-8470
VL - 29
SP - 107
EP - 121
JO - Anthropology and Medicine
JF - Anthropology and Medicine
IS - 1
ER -