The need to develop an evidence base for genetic counselling in Europe

Marion McAllister; Ramona Moldovan; Milena Paneque; Heather Skirton

doi:10.1038/ejhg.2015.134

The need to develop an evidence base for genetic counselling in Europe

Marion McAllister, Ramona Moldovan, Milena Paneque, Heather Skirton

Division of Evolution, Infection and Genomics

Research output: Contribution to journal › Letter › peer-review

Abstract

We write regarding the need for genetic counselling research across Europe. At risk relatives of the 30 million Europeans affected by genetic conditions may be neither recognised nor managed appropriately by health professionals.1 This contravenes the EU’s aim to create safe, efficient, patient-centred and sustainable health-care systems.2 For service development, a firm evidence base is needed. Areas where evidence is lacking include service provision, service quality and genetic counselling process.

Original language	English
Pages (from-to)	504-505
Number of pages	2
Journal	European journal of human genetics : EJHG
Volume	24
Issue number	4
Early online date	15 Jul 2015
DOIs	https://doi.org/10.1038/ejhg.2015.134
Publication status	Published - Apr 2016

Keywords

genetic counselling

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10.1038/ejhg.2015.134

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AB - We write regarding the need for genetic counselling research across Europe. At risk relatives of the 30 million Europeans affected by genetic conditions may be neither recognised nor managed appropriately by health professionals.1 This contravenes the EU’s aim to create safe, efficient, patient-centred and sustainable health-care systems.2 For service development, a firm evidence base is needed. Areas where evidence is lacking include service provision, service quality and genetic counselling process.

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The need to develop an evidence base for genetic counselling in Europe

Abstract

Keywords

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