Towards a Core Outcome Set for dysarthria after stroke: what should we measure?

Claire Mitchell, Kate Woodward-Nutt, Annette Dancer, Stephen Taylor, Joe Bugler, Audrey Bowen, Paul Conroy, Brooke-Mai Whelan, Sarah Wallace, Sabrina El Kouaissi, Jamie Kirkham

Research output: Contribution to journalArticlepeer-review

Abstract

Objective
To identify and agree what outcome domains should be measured in research and clinical practice when working with stroke survivors who have dysarthria.
Design
Delphi process, two rounds of an online survey followed by two online consensus meetings.
Setting
UK and Australia.
Participants
Stroke survivors with experience of dysarthria, speech and language therapists/pathologists working in stroke and communication researchers.
Methods
Initial list of outcome domains generated from existing literature and with our patient and public involvement group to develop the survey. Participants completed two rounds of this survey to rate importance. Outcomes were identified as ‘in’, ‘unclear’ or ‘out’ from the 2nd survey. All participants were invited to two consensus meetings to discuss these results followed by voting to identify critically important outcome domains for a future Core Outcome Set. All outcomes were voted on in the consensus meetings and included if 70% of meeting participants voted ‘yes’ for critically important.
Results
148 surveys were fully completed, and 28 participants attended the consensus meetings. A core outcome set for dysarthria after stroke should include four outcome domains: 1) intelligibility of speech, 2) ability to participate in conversations, 3) living well with dysarthria, 4) skills and knowledge of communication partners (where relevant).
Conclusions
We describe the consensus of ‘what’ speech outcomes after stroke are valued by all stakeholders including those with lived experience. We share these findings to encourage measurement of these domains in clinical practice and research and for future research to identify ‘how’ best to measure these outcomes.
Original languageEnglish
JournalClinical Rehabilitation
Early online date19 Feb 2024
DOIs
Publication statusE-pub ahead of print - 19 Feb 2024

Keywords

  • Dysarthria
  • stroke
  • Outcome Assessment (Health Care)
  • Rehabilitation

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