Understanding the impacts of online mental health peer support forums: A realist synthesis

Paul Marshall, Millissa Booth, Matthew Coole, Lauren Fothergill, Zoe Glossop, Jade Haines, Andrew J.E. Harding, Rose Johnston, Steven Jones, Christopher Lodge, Karen Machin, Rachel Meacock, Kristi Nielson, Jo-Anne Puddephatt, Tamara Rakic, Paul Rayson, Heather Robinson, Jo Rycroft-Malone, Nick Shryane, Zoe SwithenbankSara Wise, Fiona Lobban

Research output: Contribution to journalArticlepeer-review

Abstract

Background
Online forums are widely used for mental health peer support. However, evidence of their safety and effectiveness is mixed. Further research focused on articulating the contexts in which positive and negative impacts emerge from forum use is required to inform innovations in implementation.
Objective
To develop a realist programme theory to explain the impacts of online mental health peer support forums on users.
Methods
Realist synthesis of literature published 2019-2023 and 18 stakeholder interviews with forum staff.
Results
Synthesis of 102 evidence sources and 18 interviews produced an overarching programme theory comprising 22 context-mechanism-outcome configurations. Findings indicate that users’ perceptions of psychological safety and the personal relevance of forum content are foundational to ongoing engagement. Safe and active forums that provide convenient access to information and advice can lead to improvements in mental health self-efficacy. Within the context of welcoming and non-judgmental communities, users may benefit from the opportunity to explore personal difficulties with peers, experience reduced isolation and normalization of mental health experiences, and engage in mutual encouragement. The programme theory highlights the vital role of moderators in creating facilitative online spaces, stimulating community engagement, and limiting access to distressing content. A key challenge for organizations that host mental health forums lies in balancing forum openness and anonymity with the need to enforce rules, such as restrictions on what users can discuss, in order to promote community safety.
Conclusion
This is the first realist synthesis of online mental health peer support forums. The novel programme theory highlights how successful implementation depends on establishing protocols for enhancing safety and strategies for maintaining user engagement to promote forum sustainability.
Original languageEnglish
JournalJMIR Mental Health
DOIs
Publication statusPublished - 9 May 2024

Keywords

  • Peer support
  • digital mental health
  • systematic review

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