Visioning change: Co-producing a model of involvement and engagement in research

Caroline Swarbrick; Open Doors; Scottish Dementia Working Group; EDUCATE; Katie Davis; John Keady

doi:10.1177/1471301216674559

Visioning change: Co-producing a model of involvement and engagement in research

Caroline Swarbrick, Open Doors, Scottish Dementia Working Group, EDUCATE, Katie Davis, John Keady

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Abstract

The involvement of people living with dementia in research has traditionally been located in the realms of 'subject' or 'participant'. However, there has been an increase in demand for greater transparency by academic bidding teams (particularly within the UK) in demonstrating how people with a lived experience have been and will be involved in the research process. Located within the Economic and Social Research Council/National Institute for Health Research (ESRC/NIHR)-funded Neighbourhoods and Dementia Study (2014-2019), led by The University of Manchester (UK), this paper outlines the development of the CO-researcher INvolvement and Engagement in Dementia (COINED) Model, which was co-produced alongside three independent groups of people living with dementia: Open Doors, the Scottish Dementia Working Group and EDUCATE.

Original language	English
Journal	Dementia: The International Journal of Social Research and Practice
Early online date	16 Oct 2016
DOIs	https://doi.org/10.1177/1471301216674559
Publication status	Published - 2016

Research Beacons, Institutes and Platforms

Dementia@Manchester

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1177/1471301216674559

Revised Innovative PracticeAccepted author manuscript, 203 KB

Neighbourhoods and Dementia: A Mixed Methods Study.
Keady, J. (PI), Burns, A. (CoI), Challis, D. (CoI), Davies, L. (CoI), Leroi, I. (CoI), Nazroo, J. (CoI), Pendleton, N. (CoI), Reeves, D. (CoI), Swarbrick, C. (CoI), Tampubolon, G. (CoI), Taylor, C. (CoI) & Young, A. (CoI)
1/01/14 → 31/10/19
Project: Research

Cite this

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title = "Visioning change: Co-producing a model of involvement and engagement in research",

abstract = "The involvement of people living with dementia in research has traditionally been located in the realms of 'subject' or 'participant'. However, there has been an increase in demand for greater transparency by academic bidding teams (particularly within the UK) in demonstrating how people with a lived experience have been and will be involved in the research process. Located within the Economic and Social Research Council/National Institute for Health Research (ESRC/NIHR)-funded Neighbourhoods and Dementia Study (2014-2019), led by The University of Manchester (UK), this paper outlines the development of the CO-researcher INvolvement and Engagement in Dementia (COINED) Model, which was co-produced alongside three independent groups of people living with dementia: Open Doors, the Scottish Dementia Working Group and EDUCATE.",

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AU - Keady, John

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JF - Dementia: The International Journal of Social Research and Practice

ER -

Visioning change: Co-producing a model of involvement and engagement in research

Abstract

Research Beacons, Institutes and Platforms

UN SDGs

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Projects

Neighbourhoods and Dementia: A Mixed Methods Study.

Cite this